question

what are hospital-based cancer registries?

answer

as early as the late 1800s many institutions were reporting on the cancer experience in their area

question

in the 1920s, the _______ asked its member orginizations to submit information on bone cancer

answer

american college of surgeons

question

the first general registry was established where?

answer

Connecticut

question

what did the national cancer act of 1971 lead to?

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the establishment of the SEER program of the national cancer institute

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what does SEER stand for and what does it do?

answer

Surveillance, Epidemiology, and Ed Results It operates population based registries throughout the US

question

what is the primary goal of hospital-based cancer registries?

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improve patient care

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what does hospital-based cancer registries provide?

answer

provides a system for monitoring all types of cancer diagnosed or treated in an institution.

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the data collected from hospital-based cancer registries are used for what?

answer

to make certain that the patients have optimal care as well as to compare the institutions morbidity and survival rates with regional and national statistics and to determine the need for professional and educational programs

question

most hospitals that operate cancer registries do so inaccordance with the standards defined by the ______

answer

american college of surgeons commission of cancer

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when was the american college of surgeons commission of cancer established?

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1932

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what are the four major components of an approved cancer program include?

answer

-multidisciplinary cancer committee -multidisciplinary cancer confrences -quality outcome and improvement -cancer registry

question

what does the cancer committee do?

answer

provides cancer program leadership

question

the medical staff bylaws must identify the cancer committee as what?

answer

as a multidisciplinary standing committee

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what must the bylaws do for the cancer committee?

answer

delineate the committees duties and responsibilities

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who is on the cancer committee?

answer

must be composed of at least one board certified physician representative from -surgery -medical oncology -radiation oncology -diagnostic radiology -pathology also include the cancer liason physician

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nonphysician membership on the cancer committee must include what?

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-administration -nursing -social services -cancer registry -quality assurance

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for the cancer committee: it is expected that _____ from the ____ major sites of cancer seen at the institution will be included

answer

-physician representatives -5 major sites of cancer

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how often does the cancer committee meet?

answer

quarterly

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cancer committee: a physician is designated to provide what for the cancer program?

answer

medical direction...this individual may be the cancer committee chairman

question

multidisciplinary cancer confrences are conducted to provide what?

answer

to provide consultative services to cancer patients

question

physician reps from which fields participate in the cancer conferences?

answer

surgery medical oncology radiation oncology radiology pathology

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the number of cases presented annually at the cancer conferences is ____ to the annual analytic caseload and represent the _______.

answer

proportional (10%), institution's case mix

question

frequency of cancer conferences is determined by the?

answer

category of cancer program

question

_____ cancer conferences each ____ are required in a community hospital where annual analytic accessions exceed 500 cases

answer

2, month

question

Institutions with 750 analytic cases a year are required to meet ____ for cancer conferences

answer

weekly

question

Documentation for the cancer conferences must have the following:

answer

date, disciplines represented, # in attendance, sites discussed, prospective or retrospective cases

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the majority of cases presented at cancer conferences are ____

answer

prospective

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prospective is defined as presentation at a time when _________ could be influenced by the discussion at anytime during the course of the disease

answer

management of the patient

question

_____ of cases must be prospective at cancer conferences

answer

51%

question

didactic conferences must not exceed ___ of conference frequency

answer

25%

question

the quality of cancer patient care is ___,___,___

answer

measured, evaluated, and improved

question

Who is responsible for establishing the quality improvement priorities of the institutions cancer program and monitoring the effectiveness of quality management activities

answer

Cancer committee

question

Annually, the cancer committee shall identify at least __ important evaluation interests related to cancer patient care

answer

2

question

at least annually, the cancer committee shall assess what in order to ensure thats its achieving its priorities for improvement

answer

the effectiveness of quality

question

each year, the cancer committee shall participate in at least 2 ___ ____ of the quality measures relevant to its improvement priorities

answer

formal evaluations

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the cancer committee must document at least 2 ___ ___ ___ enhancements or improvements in each 12 month period

answer

cancer patient care

question

the fourth required element of the Comission on Cancer's cancer program is the

answer

cancer registery

question

the cancer registry is staffed by

answer

knowledgable personnel

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the staff of the cancer registry is encouraged to gain and maintain the _______ credential offered by the National Cancer Registrars Association

answer

Certified Tumor Registrar (CTR)

question

There are 3 types of population-based registeries

answer

incidence only cancer control research

question

the goal of the hospital cancer registry is to

answer

-collect data on every patient with cancer -to maintain the data in an organized way -make the data available for use by the medical staff and other interested in the morbidity and mortality of cancer patients

question

The ACS has standards for case finding, abstracting and quality control measures to ensure the accuracy of data collected. they are...

answer

-reference date -case eligibility -patient eligibility -patient index -casefinding -accession register -abstacting -coding -staging -quality control

question

The reference date for a cancer control registry must...

answer

have the beginning date of data collection, usually Jan 1, and it cannot be changed

question

Case eligibility needs to be a...

answer

reportable list and use ICD-0 to develop list

question

who is eligible to be in a cancer control registry?

answer

all inpatients and outpatients diagnoses; includes patients diagnosed and treated at the hospital, patients who were diagnosed elsewhere and receiving their first course of treatment, patients diagnosed but receiving treatment elsewhere, patients diagnosed at autopsy

question

The patient index for the cancer control registry must include:

answer

-patient name -sex -primary site of cancer -histology -date of diagnosis -accession number -sequence number -date of birth and death -MRN

question

the ability to identify every reportable case of cancer is..

answer

casefinding

question

casefinding includes which departments

answer

Pathology, HIM, radiology, outpatient

question

a permanent log of all the cancer cases entered into the database

answer

accession register

question

what is the purpose of the accession register?

answer

to assess caseload and to provide each patient with a registry ID #

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the Accession register uses ___ ___ ___ to list cases

answer

annual sequential listing 2013-0001 2013-0002 etc

question

a ___ ___ is added to end of the annual sequential listing to indicate the number of primary cancers that the patient has had

answer

sequence number 2009-0001/00 (1 primary cancer) 2009-0002/02 (had 2 primary cancers)

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the patient ___ the ___ accession number even if he returns with an new cancer - the sequence number indicates the new cancer

answer

retains the original

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what is prepared for every case that os eligible for inclusion in the database

answer

abstracts

question

where is the information for abstract obtained from?

answer

patients health record

question

the commission of Cancer allows a max delay of ___ in abstracting from the date of initial diagnosis

answer

6 months

question

Abstracting guidelines are provided in the ___ of the Commission on Cancer

answer

Registry Operations and Data Standards (ROAD)

question

in ___ it is important to determine whether the patient has been treated in another hospital

answer

abstracting

question

cancer cases originally diagnosed in your hospital are

answer

analytic cases

question

cancer cases treated elsewhere are considered

answer

non-analytic cases

question

cancer cases diagnosed elsewhere but not treated prior to coming to your hospital are

answer

analytic cases

question

What elements should be on a Cancer Abstract (25)

answer

-HRN -accession number -sequence number -year first seen -demographic info -physicians participating in care -class of case -date of initial diagnosis -primary site -laterality -histology -grade/differentiation -diagnostic conformation -size of tumor -nodes examined and # positive -AJCC classification -SEER classification -first course of treatment -dates of all treatments -dates of first recurrence -type of first recurrence -date of last contact -vital status -cancer status -followup source

question

the coding scheme traditionally used by cancer registries is the ____ published by ___ and is recommended by the commission on cancer

answer

ICD-0-2, WHO

question

what is the extent of the spread of the disease which is determined for each case and entered into the abstract

answer

staging

question

what are the elements that go into SEER staging

answer

-size of the tumor -extension -lymph nodes

question

what are the elements that go into AJCC staging

answer

-tumor sizing (T) -lymph node involvement (N) -metastases (M)

question

the ___ places accountability for quality control of registry data with the cancer committee because it has overall supervision of the cancer registry

answer

commission on cancer

question

what is the single most important function of the cancer registry

answer

follow-up

question

a successful follow-up is defined as:

answer

-documented contact with the patient through physician -readmission to the hospital -clinic visit -response to follow-up letter by patient/relative -through another registry

question

a ___ follow- up rate is required by the CoC

answer

90%

question

cases are considered "lost" to follow-up if no patient contact has been made within ___

answer

15 months

question

what are some reasons for following-up with cancer patients?

answer

-to catch recurrence early (25% of patients prone to have 2nd primary) -for better palliation -assurance of the patient -make sure patient has been rehabilitated so that he can live as normal as possible

question

What are some ways to follow-up for information?

answer

-physician follow up letters -patient letter -third party letter -hospital records(readmissions) -dept. of vital statistics (death lists) -dept. of motor vehicles -employers -obituaries -CMS -religious orgs -phone book -school -support group -labor unions

question

follow up can be done manually using a ___ ___. and automated if the registry is electronic

answer

tickler file

question

the ___ ___ provides the hospital with a forum in which to highlight the goals and accomplishments of the cancer program

answer

annual report

question

content requirements for the Annual Report of the cancer program must include:

answer

-description of the goals, achievements, and activities of the cancer program -report of the cancer registry activities -statistical summary of cancer data -in-dept statistical report in at least one major site, complete with survival analysis and narrative critique -state, regional, and national data comparision -findings of patient care evaluations and subsequent actions taken

question

the annual report must be published by ___ of the next cancer data year

answer

Nov 1

question

What maintain databases on patients with severe traumatic injuries

answer

trauma registries

question

trauma cases are usually found through the disease index or through patients identified in the..

answer

ED, neurosurgery, or orthopedics depts

question

the data required for trauma registeries are:

answer

-demographic information -info on the injury -care the patient recieved prior to hospitalization -status of the patient at the time of admission -patients course in the hospital -ICD-9-CM diagnosis and procedure codes -AIS -ISS

question

reflects the nature of the injury and the severity by body system

answer

Abbreviated Injury scale (AIS)

question

an overall severity measurement calculated from the AIS scores for the 3 most recent severe injuries

answer

Injury Severity Scale (ISS)

question

usually an annual report is developed to show the ___ of the trauma registry

answer

activity

question

___ ___ the leading cause of infant mortality in the U.S. and ___ ____ account for about 1/2 of pediactric hosptial admissions

answer

birth defects; genetic diseases

question

birth defects are classified as

answer

major or minor

question

population-based birth registries have operated since the early ____ with the earliest one being in ___

answer

1920s; new jersey

question

____ requires that data are collected and analyzed, epidemiologic research is undertaken, and information and education efforts with the aim of preventing birth defects are facilitated

answer

the Birth Defects Prevention Act of 1998

question

birth defect registries are usually population based and provide info on the incidence of birth defects to study...

answer

causes and prevention of birth defects, to monitor trends in birth defects to improve medical care, and to target interventions for preventable birth defects

question

how are birth defect cases detected?

answer

disease indexes, labor and delivery logs, pathology and autopsy reports, US reports, and cytogenetic studies

question

What kind of data is collected for birth defect registries?

answer

-demographic info -codes for diagnosis -birth weight -status at birth -autopsy -mothers use of alcohol, tobacco or drugs -fathers use - family history of birth defects -single or multiple birth -cytogenetic results

question

collect data about patients with diabetes

answer

diabetes registries

question

___ registries may limit their cases by the type (type I only, both type I and II, maternal and gestational)

answer

diabetes

question

case finding sources for diabetes registries include

answer

-hospital admission and discharge logs -pharmacy records -dietary records -ED logs -physician reporting

question

in 1988, the international implant registry was started by the MedicAlert Foundation, a nonprofit emergency alerting organization and the main objectives of the registry were

answer

to track patients so that their whereabouts are known and to facilitate timely, accurate communication netween manufacturers, patients and providers

question

a material or substance inserted in the body such as breast implants, heart valves, artificial joints, ocular lenses, defibrillators, insulin pumps, and pacemakers

answer

implant

question

which acts required facilities to report deaths and severe complications thought to be due to a device to the manufacturer and to the FDA for implant registries

answer

1990 the Safe Medical Devices Act and then amended through the Medical Device Amendments of 1995

question

what information is included in implant registeries

answer

-demographic data -facility report # -name and address of manufacturer -device brand name and common name -product model, catalog, serial # and lot #

question

____ was passed by congress in 1984 and called for a national task force on organ transplantation that was charged with making recommendations about the medical, ethical, legal, economic, and social issues regarding transplants

answer

National Organ Transplant Act (NOTA)

question

the ___ ___ recommended the establishment and operation of a national transplant registry and ___ was established in 1986

answer

task force; United network for organ sharing (UNOS)

question

UNOS members include

answer

transplant centers, procurment organizations, tissue-typing labs, public members, health and professional associations

question

___ identify patietns needing transplants and provide info to the transplant registry

answer

physicians

question

when an organ becomes available, info about it is...

answer

matched with potential donors

question

type of information collected for transplant registries

answer

-demographic data -patients diagnosis -patients status codes regarding medical urgency -patients functional status -whether the patient is on life support -previous transplants -histocompatibility

question

info on expired transplant donors include:

answer

-cause and circumstances of death -organ procurement process -medications the donor was taking -other donor history

question

info in living transplant donors include:

answer

-relationship of the donor to the recipient(if any) - clinical info -information on organ recovery -histocompatibility

question

follow up on transplant recipients include

answer

-status at the time of follow-up -functional status -graft status -use of immunosuppressive drugs

question

____registries collect vaccination info about children within a geographic area

answer

immunization

question

the purpose of immunization registries is

answer

to increase the # of infants and children who receive proper vaccinations

question

______ has worked with the National Vaccine Advisory Committee (NVAC) to develop a set of core immunization data elements to be included in all immunization registries

answer

The National Immunization Program at the CDC

question

Core elements to be included in immunization registries are

answer

-patients name, birth, sex, place of birth -mothers name -vaccine type -vaccine manufacturer -vaccination date -vaccine lot number

HIM 321. Final. Cancer Registries – Flashcards

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