Cancer Registry Structure & Management – Flashcards
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Unlock answersquestion
            Define Cancer Registration.
answer
        an information system designed for the collection, storage, management, and analysis of data on persons with cancer
question
            How do organizations such as ACS know what the recommended age for mammograms
answer
        Data is collected in an effort to control the disease and increase the scientific knowledge of cancer. Registries provide the necessary information that is used to fight the disease
question
            State-based cancer registries
answer
        are data systems that collect, manage, and analyze data about cancer cases and cancer deaths.   In each state, medical facilities (including hospitals, physicians' offices, therapeutic radiation facilities, freestanding surgical centers, and pathology laboratories) report these data to a central cancer registry.
question
            State cancer registries are designed to—
answer
        Monitor cancer trends over time.  Determine cancer patterns in various populations. Guide planning and evaluation of cancer control programs.  Help set priorities for allocating health resources. Advance clinical, epidemiologic, and health services research.  Provide information for database of cancer incidence
question
            What is cancer?
answer
        a phrase that covers many diseases with a variety of causes which result from:  Genetic predisposition, lifestyle choices, environmental factors, a combination of all of the above
question
            What is a cancer registry?
answer
        a cancer registry is an information system designed for the collection, storage, management, and analysis of data on persons with cancer.
question
            What are the functions of the state cancer registries?
answer
        Monitor cancer trends over time.  Determine cancer patterns in various populations. Guide planning and evaluation of cancer control programs.  Help set priorities for allocating health resources. Advance clinical, epidemiologic, and health services research.  Provide information for national database of cancer incidence.
question
            United States Cancer Statistics (USCS)
answer
        Since 2002, CDC and the National Cancer Institute (NCI) have combined their data sources to publish annual federal cancer statistics in the United States Cancer Statistics: Incidence and Mortality report. Produced in collaboration with the North American Association of Central Cancer Registries, this year's report includes cancer incidence data from registries covering 100% of the U.S. population, and mortality data from all states and the District of Columbia.
question
            Cancer Incidence in Five Continents
answer
        Published by the International Agency for Research on Cancer, Cancer Incidence in Five Continents is a recognized reference source on the incidence of cancer in populations around the world.
question
            Software for Collecting and Processing Data
answer
        Since 1996, CDC has developed Microsoft® Windows®-based software programs to make the process of collecting and processing data easier for medical facilities and registries. The Registry Plus™ suite consists of nine programs that may be customized for routine or special study data collection. CDC distributes these software programs, which are compliant with national standards, free of charge to the public health community.
question
            Cancer Surveillance Research
answer
        To improve the quality of data in cancer registries and enhance the data's usefulness, CDC has initiated many cancer surveillance research activities.
question
            NPCR's cancer monitoring activities include
answer
        1. Collecting and analyzing registry data and preparing the United States Cancer Statistics Web application. 2. Continuing collaborations with national partner organizations and state registries on publications using registry data. 3.Assessing the completeness and accuracy of data required to be collected by NPCR registries, including data about race and ethnicity, stage at diagnosis, and treatment.
question
            What causes cancer?
answer
        Genetic predisposition, lifestyle choices, environmental factors, and/or a combination of all
question
            Cancer in its many forms represents what?
answer
        1. A major public health issue 2.Challenge for individuals 3. Challenge for healthcare industry
question
            When and where was the oldest description of cancer discovered?
answer
        Discovered in Egypt in 1600BC when seven papyri were discovered relating earliest known descriptions of cancer.
question
            Of the seven papyri found in Egypt, two dated cancer back to when?
answer
        Two papyri contained descriptions of cancer and were written about 1600BC but the sources dated as early as 2500BC
question
            What were the two papyri describing cancer called?
answer
        Edwin Smith papyri & George Ebers papyri
question
            What did the Edwin Smith payri decribe?
answer
        Smith papyrus describes surgery relating eight cases of tumors or ulcers of the breast that were treated by cauterization, with a tool called "the fire drill". The writing say "there is no treatment"
question
            What does the George Ebers papyi describe?
answer
        Provides outline of treatments: pharmacologic, mechanical, magical
question
            Where does the origin of the word cancer come from?
answer
        the Greek physician Hippocrates (430 to 370 BC)
question
            carcinos & carcinoma were word to describe what?
answer
        non-ulcer forming and ulcer forming tumers
question
            When was the first systemized collection of information on cancer?
answer
        1728 in London
question
            When was death registration implemented in the U.S?
answer
        in 1839
question
            What year did all states in U.S start recording data on long term cancer mortality?
answer
        Since 1933
question
            What does SEER stand for?
answer
        Surveillance, Epidemiology, End Results Program
question
            Where does the term "surveillance" come from?
answer
        the French - Means to watch over
question
            Who has the oldest example of a modern cancer registry?
answer
        Hamburg, Germany - 1926
question
            In 1971 the US Cancer Act did what?
answer
        declared "the war on cancer" by budgeting money to the NCI
question
            2500 B.C.
answer
        Earliest known description of "cancer": the "Edwin Smith" and "George Ebers" papyri which describe surgery, pharmacology, and mechanical and magical treatments
question
            400 B.C.
answer
        Hippocrates described a breast "cancer" as "karkinoma" (known now as carcinoma) during surgical removal of a tumor
question
            1629 A.D
answer
        Cancer is first mentioned as a cause of death in the Bills of Mortality in England
question
            1728
answer
        London's "General Census of Cancer" - the first known systematic collection of information on cancer is generated
question
            1839
answer
        Implementation of death registration (what we now know as "death certification") in the United States
question
            1901
answer
        Earliest known population-based systematic collection of data on people with leprosy in Norway (a population-based leprosy registry)
question
            1926
answer
        A bone sarcoma registry established by Dr. Ernest Codman at Massachusetts General Hospital, one of the earliest registries established for a specific type of cancer
question
            1935
answer
        First population-based cancer registry in the United States established in Connecticut
question
            1956
answer
        The American College of Surgeons requires a cancer registry as a component of an approved cancer program
question
            1971
answer
        The U.S. National Cancer Act budgets monies to the National Cancer Institute for research, detection, and treatment of cancer
question
            1973
answer
        The Surveillance, Epidemiology (the scientific and medical study of the causes and transmission of disease within a population) and End Results (SEER) Program of NCI establishes the first national cancer registry program
question
            1992
answer
        U.S. Public Law 102-515 establishes the National Program of Cancer Registries (NPCR) and is administered by the US Centers for Disease Control and Prevention (CDC)
question
            1993
answer
        Many state laws make cancer a reportable disease
question
            What are the three main type of cancer registries?
answer
        1.Hospital-based 2. Population-based 3. Specialty-based
question
            What is the focus of hospital-based cancer registry?
answer
        Clinical care and hospital administration
question
            What is the data for used in hospital-based registries?
answer
        1. Physician education 2. Research 3. Facility utilization review
question
            What are the main sources for population-based registries?
answer
        1. Information from treatment facilities, such as hospitals, cancer centers, private clinics and hospices 2. Information from diagnostic services, such as pathology labs, 3. death certificate information from vital statistics registration system
question
            Every state in the US has a population-based state-wide CCR (central cancer registry). What are the advantages?
answer
        1. Local cancer control programs 2. Patient care programs 3. Monitoring the distribution of late-diagnosed cancer cases of those for which early diagnosis is the stategy for control
question
            SEER Program Registries collect data on what?
answer
        1. demographics 2. primary tumor site 3. tumor morphology 4. Detailed stage at diagnosis 5. First course of treatment 6. Active follow-up for cancer and vital status
question
            The National Program of Cancer Registries (NPCR) Cancer Surveillance System (CSS) was authorized by the Cancer Registries Amendment Act of 1992, allowing the CDC to?
answer
        Receive, evaluate and disseminate data from partiipating state CCRs
question
            Special Cancer Registries are established to do what?
answer
        Collect and maintain data on a particular cancer site, provide advocacy, educational opportunities, and support
question
            Who is the C- Change?
answer
        Founded in 1998, C-Change is the only organization that assembles key cancer leaders from the three sectors — private, public, and not-for-profit — and from across the cancer continuum — prevention, early detection, treatment and quality of life.   Our mission is to eliminate cancer as a major public health problem at the earliest possible time by leveraging the expertise and resources of our unique multi-sector membership.
question
            What are the seven underlying principles of C-Change?
answer
        1. to reenergize the nations effort to control cancer  2. to promote research  3. to close the gap between knowledge produced by research and the application of that information  4. to help members work together on issues that cannot be addressed by individual paticipants  5. to reach all people, particularly those at greater risk 6. to propome primary cancer prevention and early detection, to provide high-quality care, and enhance quality of life for cancer patients  7. to end tobacco use among youths and young adults
question
            what is the National Cancer Institute Cancer Biomedical Informatics Grid?
answer
        The National Cancer Institute's Center for Bioinformatics and Information Technology launched the caBIG® (cancer Biomedical Informatics Grid®) initiative in 2004 to mobilize digital capabilities for researchers in order to accelerate scientific discoveries.
question
            When was cancer first seen in humans?
answer
        in 2500BC
question
            The word cancer was first used by:
answer
        the Greek physician Hippocrates (430 to 370 BC)
question
            The term surveillance as applied to public health means:
answer
        monitoring of the occurrence of elected health conditions in the population
question
            The oldest example of a modern cancery registry is:
answer
        The Hamburg Cancer Registry in Germany
question
            Define Cancer Registration.
answer
        an information system designed for the collection, storage, management, and analysis of data on persons with cancer
question
            How do organizations such as ACS know what the recommended age for mammograms
answer
        data is collected in an effort to control the disease and increase the scientific knowledge of cancer. Registries provide the necessary information that is used to fight the disease
question
            State-based cancer registries
answer
        are data systems that collect, manage, and analyze data about cancer cases and cancer deaths.   In each state, medical facilities (including hospitals, physicians' offices, therapeutic radiation facilities, freestanding surgical centers, and pathology laboratories) report these data to a central cancer registry.
question
            State cancer registries are designed to—
answer
        Monitor cancer trends over time.  Determine cancer patterns in various populations. Guide planning and evaluation of cancer control programs.  Help set priorities for allocating health resources. Advance clinical, epidemiologic, and health services research.  Provide information for database of cancer incidence
question
            What is cancer?
answer
        a phrase that covers many diseases with a variety of causes which result from:  Genetic predisposition, lifestyle choices, environmental factors, a combination of all of the above
question
            What is a cancer registry?
answer
        a cancer registry is an information system designed for the collection, storage, management, and analysis of data on persons with cancer.
question
            What are the functions of the state cancer registries?
answer
        Monitor cancer trends over time. Determine cancer patterns in various populations. Guide planning and evaluation of cancer control programs. Help set priorities for allocating health resources. Advance clinical, epidemiologic, and health services research. Provide information for national database of cancer incidence.
question
            United States Cancer Statistics (USCS)
answer
        Since 2002, CDC and the National Cancer Institute (NCI) have combined their data sources to publish annual federal cancer statistics in the United States Cancer Statistics: Incidence and Mortality report. Produced in collaboration with the North American Association of Central Cancer Registries, this year's report includes cancer incidence data from registries covering 100% of the U.S. population, and mortality data from all states and the District of Columbia.
question
            Cancer Incidence in Five Continents
answer
        Published by the International Agency for Research on Cancer, Cancer Incidence in Five Continents is a recognized reference source on the incidence of cancer in populations around the world.
question
            Software for Collecting and Processing Data
answer
        Since 1996, CDC has developed Microsoft® Windows®-based software programs to make the process of collecting and processing data easier for medical facilities and registries. The Registry Plus™ suite consists of nine programs that may be customized for routine or special study data collection. CDC distributes these software programs, which are compliant with national standards, free of charge to the public health community.
question
            Cancer Surveillance Research
answer
        To improve the quality of data in cancer registries and enhance the data's usefulness, CDC has initiated many cancer surveillance research activities.
question
            NPCR's cancer monitoring activities include
answer
        1. Collecting and analyzing registry data and preparing the United States Cancer Statistics Web application. 2. Continuing collaborations with national partner organizations and state registries on publications using registry data. 3.Assessing the completeness and accuracy of data required to be collected by NPCR registries, including data about race and ethnicity, stage at diagnosis, and treatment.
question
            What causes cancer?
answer
        Genetic predisposition, lifestyle choices, environmental factors, and/or a combination of all
question
            Cancer in its many forms represents what?
answer
        1. A major public health issue 2.Challenge for individuals 3. Challenge for healthcare industry
question
            When was the oldest description of cancer discovered? Where?
answer
        Discovered in Egypt in 1600BC when seven papyri were discovered relating earliest know descriptions of cancer.
question
            Of the seven papyri found in Egypt, two dated cancer back to when?
answer
        Two papyri contained descriptions of cancer and were written about 1600BC but the sources dated as early as 2500BC
question
            What were the two papyri describing cancer called?
answer
        Edwin Smith papyri & George Ebers papyri
question
            What did the Edwin Smith payri decribe?
answer
        Smith papyrus describes surgery relating eight cases of tumors or ulcers of the breast that were treated by cauterization, with a tool called "the fire drill". The writing say "there is no treatment"
question
            What does the George Ebers papyi describe?
answer
        Provides outline of treatments: pharmacologic, mechanical, magical
question
            Where does the origin of the word cancer come from?
answer
        the Greek physician Hippocrates (430 to 370 BC)
question
            carcinos & carcinoma were word to describe what?
answer
        non-ulcer forming and ulcer forming tumers
question
            When was the first systemized collection of information on cancer?
answer
        1728 in London
question
            When was death registration implemented in the U.S?
answer
        in 1839
question
            What year did all states in U.S start recording data on long term cancer mortality?
answer
        Since 1933
question
            What daoe SEER stand for?
answer
        Surveillance, Epidemiology, End Results Program
question
            Where does the term "surveillance" come from?
answer
        the French - Means to watch over
question
            Who has the oldest example of a modern cancer registry?
answer
        Hamburg, Germany - 1926
question
            In 1971 the US Cancer Act did what?
answer
        declared "the war on cancer" by budgeting money to the NCI
question
            2500 B.C.
answer
        Earliest known description of "cancer": the "Edwin Smith" and "George Ebers" papyri which describe surgery, pharmacology, and mechanical and magical treatments
question
            400 B.C.
answer
        Hippocrates described a breast "cancer" as "karkinoma" (known now as carcinoma) during surgical removal of a tumor
question
            1629 A.D
answer
        Cancer is first mentioned as a cause of death in the Bills of Mortality in England
question
            1728
answer
        London's "General Census of Cancer" - the first known systematic collection of information on cancer is generated
question
            1839
answer
        Implementation of death registration (what we now know as "death certification") in the United States
question
            1901
answer
        Earliest known population-based systematic collection of data on people with leprosy in Norway (a population-based leprosy registry)
question
            1926
answer
        A bone sarcoma registry established by Dr. Ernest Codman at Massachusetts General Hospital, one of the earliest registries established for a specific type of cancer
question
            1935
answer
        First population-based cancer registry in the United States established in Connecticut
question
            1956
answer
        The American College of Surgeons requires a cancer registry as a component of an approved cancer program
question
            1971
answer
        The U.S. National Cancer Act budgets monies to the National Cancer Institute for research, detection, and treatment of cancer
question
            1973
answer
        The Surveillance, Epidemiology (the scientific and medical study of the causes and transmission of disease within a population) and End Results (SEER) Program of NCI establishes the first national cancer registry program
question
            1992
answer
        U.S. Public Law 102-515 establishes the National Program of Cancer Registries (NPCR) and is administered by the US Centers for Disease Control and Prevention (CDC)
question
            1993
answer
        Many state laws make cancer a reportable disease
question
            What are the three main type of cancer registries?
answer
        1.Hospital-based  2. Population-based  3. Specialty-based
question
            What is the focus of hospital-based cancer registry?
answer
        Clinical care and hospital administration
question
            What is the data for used in hospital-based registries?
answer
        1. Physician education  2. Research  3. Facility utilization review
question
            What are the main sources for population-based registries?
answer
        1. Information from treatment facilities, such as hospitals, cancer centers, private clinics and hospices  2. Information from diagnostic services, such as pathology labs,  3. death certificate information from vital statistics registration system
question
            Every state in the US has a population-based state-wide CCR (central cancer registry). What are the advantages?
answer
        1. Local cancer control programs  2. Patient care programs  3. Monitoring the distribution of late-diagnosed cancer cases of those for which early diagnosis is the stategy for control
question
            SEER Program Registries collect data on what?
answer
        1. demographics  2. primary tumor site  3. tumor morphology  4. Detailed stage at diagnosis  5. First course of treatment  6. Active follow-up for cancer and vital status
question
            The National Program of Cancer Registries (NPCR) Cancer Surveillance System (CSS) was authorized by the Cancer Registries Amendment Act of 1992, allowing the CDC to?
answer
        Receive, evaluate and disseminate data from partiipating state CCRs
question
            Special Cancer Registries are established to do what?
answer
        Collect and maintain data on a particular cancer site, provide advocacy, educational opportunities, and support
question
            Who is the C- Change?
answer
        Founded in 1998, C-Change is the only organization that assembles key cancer leaders from the three sectors — private, public, and not-for-profit — and from across the cancer continuum — prevention, early detection, treatment and quality of life.   Our mission is to eliminate cancer as a major public health problem at the earliest possible time by leveraging the expertise and resources of our unique multi-sector membership.
question
            What are the seven underlying principles of C-Change?
answer
        1. to reenergize the nations effort to control cancer  2. to promote research  3. to close the gap between knowledge produced by research and the application of that information  4. to help members work together on issues that cannot be addressed by individual paticipants  5. to reach all people, particularly those at greater risk  6. to propome primary cancer prevention and early detection, to provide high-quality care, and enhance quality of life for cancer patients  7. to end tobacco use among youths and young adults
question
            What is the National Cancer Institute Cancer Biomedical Informatics Grid?
answer
        The National Cancer Institute's Center for Bioinformatics and Information Technology launched the caBIG® (cancer Biomedical Informatics Grid®) initiative in 2004 to mobilize digital capabilities for researchers in order to accelerate scientific discoveries.
question
            When was cancer first seen in humans?
answer
        in 2500BC
question
            The word cancer was first used by:
answer
        the Greek physician Hippocrates (430 to 370 BC)
question
            The term surveillance as applied to public health means:
answer
        monitoring of the occurrence of elected health conditions in the population
question
            The oldest example of a modern cancery registry is:
answer
        The Hamburg Cancer Registry in Germany
question
            What are examples of the kind of data sources Hospital-based registries provide:
answer
        1. Active follow-up information on registered patients  2. Patients diagnosed and/or treated for cancer at a particular facility(ies)
question
            What are examples of the kind of data sources Population-based registries provide:
answer
        1. Death certificate information from the vital statistics registration system 2. Patients diagnosed in independent pathology laboratories.  3. Active follow-up information on registered patients.  4. Patients diagnoses and/or treated for cancer at a particular facility(ies).  5. Patients treated in independent cancer centers.  6. Patients from private clinic and hospices.
question
            What are examples of the kind of data sources Specialty-based registries provide:
answer
        1.Patients who voluntarily self-enroll.  2. Only patients with certain familiar cancers  3. Only patients with a particular type of cancer  4. Patients enrolled by physicians
question
            TRUE or FALSEThe National Program of Cancer Registries (NPCR) Cancer Surveillance System (CSS) was authorized by National Cancer Act in 1971?
answer
        FALSE ~ It was authorized by the Cancer Registries Amendment Act of 1992, allowing the CDC to receive, evaluate and disseminate data from participating state CCRs
question
            The first code manual in cancer registries was published by?
answer
        ACS
question
            NAACCR's primary role is to represent and serve as a forum for the organization, operation, quality control, and statistical reporting for which registry type?
answer
        for population based cancer registries
question
            The fist national cancer registry program was established by?
answer
        SEER
question
            The International Classification of Diseases for Oncology is published by?
answer
        The World Health Organization
question
            The CTR Certified Tumor Registrar credential is awarded by?
answer
        NCRA - North American Association of Central Cancer Registries
question
            United States Cancer Statistics (USCS) contains data from?
answer
        NPCR & SEER
question
            The cancer registry textbook titled Cancer Registry Management: Principles & Practice is published by?
answer
        NCRA National Cancer Registrars Association
question
            The Self Instructional Manuals for Tumor Registries is published by?
answer
        SEER -Surveillance, Epidemiology (the scientific and medical study of the causes and transmission of disease within a population) , End Results Program - 10% of population
question
            What publishing organization publishes Cancer Facts and Figures?
answer
        ACS - American Cancer Society
question
            What publishing organization publishes Patient Care Evaluation Studies?
answer
        CoC - Commission on Cancer
question
            What publishing organization publishes Cancer in North America?
answer
        NAACCR - North American Association of Central Cancer Registries
question
            What publishing organization publishes Cancer in Five Continents?
answer
        IACR
question
            What is the biggest challenge for cancer registrars?
answer
        keeping up with changes in data collection, coding, and reporting standards
question
            What are the goals of the Hospital-based cancer registry?
answer
        1. Evaluating clinical care and hospital administration  2. Improving patient care programs  3. Providing advocacy and educational opportunities to cancer patients
question
            What are the goals of the population-based cancer registry?
answer
        1. Advancing clinical, epidemiological, and health services research on cancer  2. Exploration of trends in cancer care  3. Creation of regional and state benchmarks for hospitals  4. Determination of cancer patterns among various populations or sub-populations  5. monitoring cancer trends over time  6. Guiding planning and evaluation of cancer control efforts to help prioritize health resource allocations  7. Improving patient care programs
question
            What are the goals of the Specialty-based cancer registry?
answer
        1. Advancing clinical, epidemiological, and health services research on cancer  2. Providing advocacy and education opportunities to cancer patients
question
            The NCDB (NATIONAL CANCER DATA BASE)
answer
        Establish in 1989 by the CoC as a nationwide oncology outcomes database; it is one of the oldest and largest special population-based registries in the US
question
            SPECIAL CANCER REGISTRIES
answer
        Specialty cancer registries may be established to collect and maintain data from specific facilities such as the ACoS CoC's National Cancer Data Base (NCDB), on a particular type of cancer site
question
            What is the primary purpose of the Hospital-based cancer registry?
answer
        is to capture the cancer experience of that hospital. In particular, they are charged with identifying all patients diagnosed and/or treated for cancer at that hospital and collecting specific information about those patients.
question
            What is done with the information of patients who are diagnosed with cancer while in the hospital?
answer
        the sources of information (or casefinding sources) used to identify these patients are based on any service area where a cancer patient may interact with the facility (inpatient admission, outpatient visit, etc.). Reports from these service areas that have a cancer related diagnosis are matched against the cancer registry database to identify new patients that need to be abstracted. The registry may also need to seek information from outside of the facility to ensure that the complete diagnosis and first course of treatment information has been included.
question
            What is the focus of hospital-based cancer registry?
answer
        is on clinical care and hospital administration. The data is used by administration in making decisions about service and money allocation, by physicians for education and studies, and much, much more
question
            The first hospital cancer registry in the United States was called what? Established when?
answer
        Yale-New Haven Hospital Cancer Registry was founded in 1926.
question
            Central Cancer Registry (CCR).
answer
        These are called reporting sources such as treatment centers, hospitals, and physician offices. In addition, reporting sources also include linkages to databases that can help identify cancer patients such as the state's death certificate database or to pathology laboratory databases. For these linkages, the CCR must then follow back to the managing physician or facility to get the detailed cancer information
question
            How can the data from Population-based registries be used?
answer
        for monitoring the distribution of cancer among communities, ethnicity, age and other demographic groups. Cancer statistics provided by population-based cancer registries make it possible for public health administrators to evaluate suspected clusters of cancer within communities or population groups.
question
            Where and when was the first true Central Cancer Registry?
answer
        in Connecticut which was formed in 1935 with cases dating back to 1935. Massachusetts had a pilot program several years earlier in 1926
question
            Does the CoC receive data from Central Cancer Registries?
answer
        Central cancer registries do send data directly to SEER, NPCR and NAACCR. Because hospital registries report to the central cancer registry, the data reported to SEER, NPCR and NAACCR will include the hospital data.
question
            in 1913 by the Congress of North American Surgeons, what group demonstrated success of data collection methods to monitor and evaluate pattern of outcome?
answer
        Cancer Campaign Committee
question
            What is the national professional organization for cancer registrars?
answer
        The National Cancer Registrars Association (NCRA) represents registry professionals and offers college programs, conferences and various other educational opportunities for all registrars.
question
            What makes the foundation for a registry to provide consistant, reliable records?
answer
        Teamwork and knowledge
question
            What are the job duties of a registry/registar?
answer
        1. Casefinding 2. Abstracting 3. Follow-up 4. Analyzing Work Chart a. location/logistics b. Cancer Committee meetings c. Cancer confrences d. Audits e. Patient case studies f. Data requests g. Other administrative duties
question
            What a factors in determining "time" in staffing a registry?
answer
        1. Knowing what is being asked of the registry 2. Knowing what is required of the registry
question
            What is the best wat to determine staffing needs for a registry?
answer
        A time and motion study ~ transferred into work-flow charts and tables making it easier to establish productivity goals
question
            What is the term used when you document the amount of time and series of actions within a process?
answer
        Step Assessment
question
            CTR
answer
        Certified Tumor Registrar - credentialed professional who has passed a standardized test in cancer data management
question
            What are two important steps in the planning of a regisry?
answer
        1. Project furure growth 2. Try to anticipate future space, equipment and personnel needs
question
            What a the four sections to a budget?
answer
        1. Capital Purchases 2. Salaries 3. Benefits 4. Supplies (which equate to expense, revenue and capital)
question
            Are registries revenue producing departments?
answer
        No
question
            What is budgeting?
answer
        the process of planning future activities and exprssing those plans in a formal manner in terms of cost
question
            What is budgetary control?
answer
        the use of the budget to regulate and guide activities requiring and using resources for the development of new services, expanding services, increasing revenues or decreasing operating expenses.
question
            What are three types of budgets?
answer
        1. Top-down 2. Botton-up 3. Zero-based
question
            What are the five steps in the budgeting process?
answer
        1. Preparation 2. Presentation 3. Approval 4. Execution 5. Monitoring
question
            What does monitoring a budget involve?
answer
        the careful review of periodic budget reports that show year to date cumulative figures.
question
            The planning process of a Cancer Registry is defined by what?
answer
        The registry objectives. The standards of the ACoS/CoC and the COC publication, Facility Oncology Registry Data Standards (FORDS) provide a basis for objectives development.
question
            What are objectives used to determine in planning a cancer registry?
answer
        pesonnel, workspace, equipment needs and the basis for registry job descriptions
question
            One of the earliest Registry Staffing Manuals published by the National Cancer Registrars Association in 1989 recommended 14 areas of responsibitily for registry job descriptions. What are they?
answer
        Responsible for:  1. cancer program management 2. information management  3. information retention and retrieval 4. personnel administration  5. registry statistics  6. legal & ethical perspectives (including ROI)  7.quality assurance  8. diagnosis, stage, & treatment coding; classifying; & indexing  9. educational & technical qualifications - knowledge of the disease process, diagnostic methods & procedures, composition of the health record, data interpretation, & statistical & analytical skills  10. hours of work  11. interactions with medical and admin. staff  12. intradepartmental & interdepartmental relationships 13. appropriate memerships  14. physical requiremnts
question
            What are some of the factors that influence the registry's staffing needs?
answer
        Caseload, date usage, registry start or reference date, data management, cancer program functions
question
            What is the purpose of the Policy & Procedure Manual?
answer
        A manual that documents each phase of cancer registry operations must be developed and maintained regularly. To outline operational and departmenta expectations and provide enough detail to allow smooth operations.
question
            What are some recommended items to included in the registry's policy and procedure manual?
answer
        abstracting, case acceessions, case eligibility, casefinding, coding references, confidentiality and ROI, dates of implementation or changes in policies or registry operations, follow-up, job descriptions, maintaining and using the suspense system, quality control of registry data, reference date, reporting requiremnets and mechanisms, retention of documents, staging systems
question
            What is the reference date and what does it do?
answer
        provides the start date of dta collection.  It is always Jan. 1 of any given year.
question
            What is the reportable list?
answer
        specifies which neoplasms will be included in the registry database.
question
            What must be decided before data collection can begin on a registry?
answer
        the reference date  the reportable list
question
            The NCI SEER Program receives population-based cancer data from?
answer
        Selected geographical areas The NCI SEER Program is a national population-based cancer registry that monitors a representative sampling of certain geographic areas or about 26% of the US population. Some entire states report cancer data to SEER, while some states only have certain metropolitan areas.
question
            What does the Policy and Procedure Manual do?
answer
        1. promotes consistency  2. Serves as a training tool  3. Contains the reportable list  4. All of the Above
question
            The monitoring component for the health facility's cancer program is the?
answer
        1. Cancer Registry  2. Hospital Administration  3. Commission on Cancer  4. Central Cancer Registry
question
            Which one of the following does NOT describe a central cancer registry?
answer
        1. Identifies all individuals with a diagnosis of cancer residing in the defined population  2. Is considered a population-based registry  3. Uses data to support the requirements of the Commission on Cancer  4. Uses reporting sources such as physician offices and pathology laboratories to identify cases  5. Uses data to monitor the distribution of cancer among communities, ethnicity, age and other demographic groups
question
            What type of registry uses data to support the requirements of the Commission on Cancer?
answer
        Hospital Registries
question
            The first step in determining staffing, office space and equipment needs is to:
answer
        1. Determine how long it takes to abstract a case 2. Establish the caseload  3. Determine what department the cancer registry will directly report to  4. Determine how much money has been allocated in the budget  The caseload will greatly help determine staffing, office space and equipment needs.
question
            The American Cancer Society estimates that about _____________________ new cases of cancer will be diagnosed in 2012.
answer
        1. 1 million  2. 1.6 million  3. 8.9 million   4. 16 million
question
            Which organization acts as the clearing house for changes to data standards and standardizes the requirements for all standard setting organizations?
answer
        1. NCRA   2. CoC  3. NAACCR  4. SEER  5. NPCR Proposed changes to data standards are sent to the NAACCR Uniform Data Standards Committee. This committee is composed of members from all of the standard setting organizations.
question
            Which one of the following does not accurately describe specialty cancer registries?
answer
        1. participation in a specialty cancer registry is mandatory 2. specialty cancer registries can be site-specific  3. specialty cancer registries may register entire families including those without cancer  4. a specialty cancer registry can be institutional, national or even internationally based
question
            Which one of the following would accurately describe the Commission on Cancer?
answer
        1. Requires that a cancer registry be a mandatory component of their accredited program   2. Collects data from selected states and geographical areas  3. Charged with establishing central cancer registries in states where they did not previously exist  4. Membership organization representing cancer registry professionals  5. Oversees the Uniform Data Standards Committee that promotes standardized data transmission
question
            Describe the role of the Commission on Cancer (CoC)
answer
        They require that a cancer registry be a mandated component of their accredited program ~ SEER collects data from selected states and geographical areas. NPCR was charged with establishing central cancer registries in states where they did not previously exist. NCRA is a membership organization representing cancer registry professionals. NAACCR oversees the Uniform Data Standards Committee that promotes standardized data transmission.
question
            The American Cancer Society estimates that one of every _____ deaths in America is from cancer.
answer
        1. Two  2. Three  3. Four  4. Five
question
            Each standard setting organization represents varying registry interests. The CoC represents:
answer
        1. State Registries   2. Hospital Registries   3. National Registries   4. Both State and Hospital   The American College of Surgeons Commission on Cancer is concerned with hospital based registries. Hospital registries send their data to the CoC's National Cancer Data Base.
question
            Hospital cancer registrars obtain information about a case for the cancer registry abstract from:
answer
        1. the hospital's medical record  2. the free standing radiation center across town  3. staff and non-staff physician offices  4. all of the above as necessary for case completion Registrars bridge the information gap and collect all of the information from multiple sources to capture complete cancer information on all of their patients.
question
            A Time-and Motion Study can help determine:
answer
        1. the registry's case load  2. the amount of equipment necessary  3. staffing needs and productivity  4. all of the above requirements  Each facility has unique organization and data requirements so the best way to define staffing needs is with a time-and-motion study.
question
            The National Cancer Act of 1971, often referred to as the "War on Cancer," established the:
answer
        1. National Cancer Institute's Surveillance, Epidemiology and End Results Program (SEER)  2. Center for Disease Control's National Program of Cancer Registries  3. North American Association of Central Cancer Registries  4. American College of Surgeons' Commission on Cancer
question
            National reporting rules and requirements ensure that the data collected, regardless of where it is collected, is:
answer
        1. Facility specific  2. State specific  3. Standardized  4. Customized The establishment of standard setting agencies provides reporting requirements to cancer registries, ensuring that what one cancer registrar in one facility collects is collected the same way as another cancer registrar in another facility - It is what makes the data meaningful to the users of the data.
question
            Cancer registrars who are certified are required to acquire _______ continuing education (CE) hours every _____ year(s).
answer
        1 20/1  2. 20/2  3. 10/1  4.10/2 Certified cancer registrars are required to acquire twenty continuing education (CE) hours every two years.
question
            The cancer registrars' certification credential is called the:
answer
        1. Certified Tumor Registrar  2. Certified Tumor Registry  3. Certified Cancer Registrar  4. Certified Cancer Registry
question
            The main components of a registry budget are:
answer
        1. planning and controlling  2. expense, capital and revenue  3. receivables and payables  4. none of the above
question
            The main purpose of a cancer registry is to:
answer
        1. provide information to prevent and control cancer and improve care  2. record the number of visits each cancer patient makes to the facility for care  3. provide staff for the cancer program  4. none of the above  Cancer registries are fundamental for cancer prevention and control.
question
            Some variables that may effect registry staffing include:
answer
        1. ACoS/CoC accreditation status  2. completeness of the medical records  3. amount of data to be collected  4. all of the above  5. none of the above  ACoS/CoC accredited cancer programs must function under certain guidelines and the completeness of the health records will impact how much information outside of the facility the registrar must gather to complete each case. Also, increasing the amount of data items will impact the necessary time and staff needed