Cancer Registry Principles and Practice – Flashcards
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Cancer in humans was first seen
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In 2500 B.C
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The word cancer was first used by
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The greek physician Hippocrates
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The term surveillance as applied to public health means
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Monitoring of the occurrence of selected health conditions in the population
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The oldest example of a modern cancer registry is
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The Hamburg Cancer Registry in Germany
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Which are types of cancer registries
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Population-based registries Specialty registries Hospital-based registries
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The first code manual used in cancer registries was published by
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ACS (american collage of surgeons)
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NAACCR's PRIMARY ROLE IS TO REPRESENT AND SERVE AS A FORUM FOR THE ORGANIZATION, OPERATION, QUALITY CONTROL, AND STATISTICAL REPORTING
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For population-based cancer registries
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The first national cancer registry program was established by
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SEER
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The international Classification of Diseases for Oncology is published by
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WHO
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The CTR, Certified Tumor Registrar credential is awarded by
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NCRA
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United States Cancer Statistics (USCS) contains data from
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NPCR and SEER
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The Self Instructional Manuals for Tumor Registrars series is published by
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SEER
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Cancer Facts and figures published by
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ACS
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Patient Care Evaluation Studies published by
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CoC
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Cancer in North America published by
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NAACCR
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Cancer in Five Continents published by
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IACR
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Accreditation for formal education programs that provide entry-level professional preparation with a major emphasis in Cancer Registry Management is offered by
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NCRA
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One of the biggest challenges to cancer registrars will continue to be
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Keeping up with changes in data collection coding, and reporting standards
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Hospital based Cancer Registry
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Evaluating clinical care and hospital administration Providing advocacy and educational opportunities to cancer patients Improving patient care programs
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Population-based cancer registry
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- Advancing clinical, epidemiological, and health services research on cancer - Exploration of trends in cancer care - Creation of regional and state benchmarks for hospitals - Determination of cancer patterns among various populations or sub-populations - Monitoring cancer trends over time - Guiding planning and evaluation of cancer control efforts to help prioritize health resource allocations - Improving patient care programs - Research into the cause of cancer
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Specialty cancer registry
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- Advancing clinical, epidemiological and health services research on cancer - providing advocacy and educational opportunities to cancer patients - gathering and disseminating epidemiologic data on a specific type of cancer - research into the cause of cancer
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The use of standard data item definitions facilitates
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Training procedures for coders Common editing procedures Comparability of data
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Reliability refers to
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How consistently different people will code the same circumstances the same way
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In 2010, the way registries transmit dates was changed to improve
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Intraoperability of date transmission
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When an old item is no longer relevant
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One or more new response categories may be added to the older item The old item may be dropped, and no longer coded
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New cancer registry data items may be added
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As a result of medical advances As a result of advances in computer communication technology As a result of more widespread access to and use of registry data
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Data set
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The collections of data items maintained by a registry
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Standard data item
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Data item whose codes, definitions, and coding instructions are shared among registry organizations
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Data dictionary
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Provides coding instructions, code definitions, and the code options
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Interoperability
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Consistency with which varied organizations and software systems handle the transmission of similar information
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Lead time error
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Can occur when medical technology advances and some cancers are diagnosed earlier in their progression than in the past
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Administrative data items
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Can be used to identify the coding scheme in used when a case was originally coded
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Relevance of a data item
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Can occur when medical technology advances and some cancers are diagnosed earlier in their progression than in the past
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How are accurate time frames determined for a specific process or task
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Assessment of steps studies Time-motion studies
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Which items affect staffing
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The facility type Type and number of physician requests Number of meetings for which the registrar is a participant or staff Budget
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Advantages of having permanent cancer registry staff
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- permanent staff can work remotely - traditionally, there are no housing costs - staff knows the facility and the job expected of them - there is consistent staffing
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Advantages of outsourcing the cancer registry
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- the number of staff can often be increased or decreased quickly - short- or long-term commitments can be negotiated - on-site or remote staffing can be negotiated - specific aspects/projects or the entire responsibility of the cancer registry can be negotiated
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How often should time-motion studies be performed
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At predetermined intervals or when a new or change of responsibility occurs
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How many time-motion studies need to be done
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One for each registry process or grouping of processes as determined by the cancer registry
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Registry staff can include
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Epidemiologists CTRs Abstractors Follow-up clerks Statistical analysts
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Advantage of a remote staff
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Less office space needed at the facility Flexible hours Remote staff can work from anywhere, which gives the registry a larger pool of staff to choose from
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Why would a registry need someone on-site
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To staff cancer conferences or committee meetings To process incoming mail To manage outside requests for follow-up To handle hard copy reports
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Effect electronic medical records has on registry operation
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Allows for remote workers Allows for chart retrieval from computers Aggregates the patient information Provides information in real or near real time
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Where should computer monitors be placed
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Computer monitors should be placed with the top line at or below eye level
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Cancer registry budget items
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Funds for supplies, including providing snacks or drinks at meetings Travel costs for meetings Cost of electricity, heat, housekeeping, and maintenance staff Salaries for registry staff
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Which procedures should be done to ensure that all costs have been included in the budget
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Keep records of invoices Analyze information from previous budgets Check with other registrars Review information supported by NAACCR or NCRA
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What is a non revenue-producing department
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A department that depends on a sponsoring department and/or grants for support
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Where can one look to find c urgent salary compensation
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The internet Human resources Other registers Want ads
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Why does a registry continually monitor registry work flow
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To keep up with current requirements To keep appropriate staffing levels
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Law that covers wrongful acts that result in harm to another person, such as invasion of privacy, and can result in compensation to the injured part
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Tort
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A patient's right to personal privacy and confidential handling of medical records is covered under what important federal law concerned with health insurance portability?
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HIPAA
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Usually, federal law preempt state law, except where state law is
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More strict than the federal law
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A court order to provide certain documents, such as medical records, is called
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Subpoena
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Which are federal administrative agencies that may affect cancer registry operation
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The national cancer institute The centers for Disease Control and Prevention
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Under what circumstances can confidential cancer registry data be made available
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To provide follow up information to an approved facility
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Solution to keeping data secure
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Passwords, audit control
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Solution to transmission of confidential data
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Data encryption
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Solution to appropriate release of data
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Explicit administrative authorization
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Solution to computer failure
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Automatic back up system
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Cancer registrars need to be concerned with confidentiality regarding
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Patient information Identity of health care professional Identification of institution
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It is unethical for the cancer registry professional to place this ahead of service
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Material gain
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Examples of possible duality of interest
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Outside consultation services Committee appointments Business enterprises interests
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Any charges of unethical behavior or alleged violations are investigated by
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NCRA Ethics Committee
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Guidelines addressed in the NCRA Professional Practice Code of Ethics are
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Cooperation with other professions and organizations
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A complete listing of accredited college programs for registrars can be accessed at which organizations web sites
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NCRA
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an emphasis on cancer surveillance may include what
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evaluation of efficacy of treatment analyzing referral patterns compliance with treatment guidelines
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Some barriers to establishing a mentoring relationship for the cancer registry professional include what
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time constraints specialization of the field
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benefits of mentoring for employers include what
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fewer errors shorter learning curve happier employees
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which groups benefit from registrars working together and helping each other
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cancer surveillance community researchers cancer programs cancer patients
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Registrars should no seek what through volunteerism
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financial or material gains
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Privacy
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permissible means of access, use, and disclosure of the applicable patient information
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security
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governs the operational and technical mechanism necessary to protect this information.
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What device protects a registry's network from external intrusions?
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Firewall
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What type of network allows registry staff in different cities to share computer resources
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Wide Area Network
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Why is it important for laptop computers to be configured with disk encryption
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they may be easilty lost or stolen
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which are open-source database applications
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MySQL Postgres
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what computer language is often used to create, update, and delete data from a database
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SQL
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Why is a relational database structure better for storing registry data than a NAACCR exchange record
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- registry data are logically grouped into records such as patient demographics and cases - the NAACCR record is designed for data exchange, not storage - some NAACCR data exchange fields simply do not make sense to store in a registry database - the NAACCR data exchange record can accommodate only a fixed number of therapy records
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major functions of central registry software systems
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data entry and import record consolidation record linkage supporting quality assurance operations reporting and analysis data exchange and export provide access security task and record management
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What software functions are unique to hospital registries
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conducting active patient follow-up submitting data to the American College of Surgeons' National Cancer Database
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Why should central registries be concerned with registry data management systems used by their reporting hospitals
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- the majority of central registry data is first collected by the hospital data management system - edit checks and coding rules may or may not be consistently implemented by hospitals registry vendors - it may be important when coordinating transitions to new coding standards
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Software applications important to registry operations
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record linkage statistical analysis geospatial analysis edit checking electronic pathology transmission collaborative stage data collection system
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Why should a probabilistic record linkage application be used to link records in a central registry
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it makes it feasible and efficient to link data sets in a statistically justifiable manner
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What are two advantages of increasing interoperability of registry data?
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- it enhances the central registry's ability to automatically incorporate data from other sources - it makes it easier for researchers and others to utilize registry data
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Most important to achieving interoperability with other data systems is:
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Supporting and adopting widely used data standards
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Semantic interoperability
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the ability of computer systems to exchange data with unambiguous, shared meaning.
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Syntactic interoperability
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If two or more systems are capable of communicating with each other, when using specified data formats, communication protocols. XML or SQL standards are among the tools
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What does HL7 stand for, and what is it
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Health Level Seven is a widely used data exchange standard in the healthcare industry
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What are the three key roles for cancer registry technical staff
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Software development Systems administration Registry operations technical support
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How much of IT staff time should be devoted to the registry
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100%
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What is an essential element of proper disaster recovery planning
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Providing a reliable backup and recovery system
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When can confidential patient data be transmitted over the web or internet
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- when using encrypted web connections - by attaching data to e-mail in an encrypted file - when data are encrypted on physical media
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How often should a registry plan to replace desktop computers
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Every 3 to 5 years
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What changes will technological advances likely bring to cancer registries?
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- Registry data will be available closer to real time - Registry data will become even more clinically relevant and important
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What was the main reason data edits were developed
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Standardization of data collection
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When were the first coding rules and guidelines established
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1950's
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What group has members from all standard-setting organizations and whose goal is data standardization
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Uniform data standards committee (UDSC) of the American Association of Central Cancer Registries (AACCR)
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Two organizations responsible for the development of Edits software
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1. The center for disease control and prevention (CDC) 2. The national program of cancer registries (NPCR)
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When were the first standard edits made available
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1996
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Major changes to registry data changes by standard setter are instituted every _______ years
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3
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Three challenges to standardizing data edits
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- differing computer language in registry systems - Standard specifications may be programmed differently - Incomplete editing of data during data entry
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Why are standard data edits created
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To test data against coding rules
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What is the "why, when, where and how" of edits
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Why: to identify incorrect date When: state of SEER submission, NCDB call for data (hospital registries, NAACCR or NPCR call for data (central registries) Where: hospital or central registry How: Flag blank fields Indicate single field edit errors Specify disagreement between multiple data fields Indicate potential errors that require manual review
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Three edit components
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METAFILE Edit set Individual edits
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Metafile
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Set of instructions
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What does the metafile contain
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Everything necessary to edit the data, except the data
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Five key components of a metafile
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Data dictionary Record layouts Edit sets Standard setting agencies User lookup tables
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What is the purpose of an edit set
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To group individual edits
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Edits contain the _______ to edit each field
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Logic
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Three types of edits
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Single-field edits Inter-field edits Inter-record edits
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Edits are the ______________
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Quality control gatekeepers
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Which is the most important to consider when trying to resolve an edit using the edit report
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Error message
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Why might the error summary on the edit report be important to the cancer registry manager
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Frequently encountered errors may mean that staff educations is needed
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What the name of the edits feature that allows a user to note that the data are unusual but correct
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Edit over-ride
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ONCHIT
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Office of the national coordinator for health information
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ONC
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Office of national coordinator
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Vision of a computerized, or electronic medical record began in
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1991
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During the George Bush administration (2001-2009), and also during the Obama administration
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Attention was paid to, and support was given to the emerging EHR environment
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Progress toward the EHR evolution has included significant effort by which entities
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Government and nongovernment
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What does the terminology "meaningful use" have to do with the EHR environment?
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A specific EHR must have "meaningful use" features and benefits to qualify for certain government funding
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PHR
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Personal health record
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RHIO
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Regional health information organization - group of organizations within a specific area that share healthcare related information electronically according to accepted healthcare information technology
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HIE
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Health information technology - gathering of healthcare information electronically across organizations within a region or community
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HL7
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Health Level 7 - produce standards/protocol for transmission of clinical and administrative data
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ANSI
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American national standards institute - founded in 1018 as a nonprofit, voluntary collaboration for standardization activities
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LOINC
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Logical Observation Identifiers Names and Codes - terminology database facilities the exchange of clinical results, such as blood. Hemoglobin, serum potassium, or vital signs, for clinical care, outcomes management, and research
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CPRI
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Computer Based Patient Record Institute
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Synoptic pathology reporting
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May help facilitate online abstracting Use of structured checklists to produce standardized clinical documentation.
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PHP, CSS, Javascript
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Three current technologies that have evolved to create dynamic websites
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Acrobat (.pdf)
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Which file format is recommended
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Ncra-usa.org
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Example of a domain name
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HTTP
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Hypertext transfer protocol
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URL (Uniform Resource Locator)
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Synonym of web address
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How can a file be attached to an e-mail
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By dragging and dropping the attachment on the e-mail By clicking the paper clip icon in the e-mail toolbar and browsing for the file
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NCRA and NAACCR
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Only two nation-wide membership organizations with web sites for cancer registrars in the united states. They contain information that is useful for both members and nonmember
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What would be the major concern of your IT/IS staff about storing data in the cloud
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Data security
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Multiple myeloma
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Cancer of plasma cells Patient with this disease have impaired immune function Men are more likely than women to be diagnosed with the disease Fatigue in patients is caused by a decrease in the quantity of red blood cells
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What is true about Virtual servers
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Several may exist on the same server hardware They may be easily scaled depending on the applications requirements Amazon web services is a major provider of virtual servers
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Google chrome
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Operating system (OS) and a Web browser
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When a file is "checked out" from SharePoint
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Only the user who checked out the file can edit the file before checking it back in
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A web URL is entered into the _________________of the Web browser
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Address bar
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Example of a Web 2.0 site
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Facebook.com Wikipedia.com LinkedIn.com Myspace.com YouTube.com
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Which entity provides the rules and guidelines used by central registries to determine residency at diagnosis
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U.S. Census Bureau
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Currently in the United States, which governing agencies set reporting standards for hospital and population based registries
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American college of surgeons commission on cancer ( National program of cancer registrars Surveillance, epidemiology, and end results
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Approximately what percentage of cancer cases is histologically confirmed
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95%
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Which data formats are recommended by NAACCR to laboratories for reporting pathology report text information electronically to central registries
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HL7 Pipe-delimited
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Updates to the ICD-9-CM codes are effective. Annually in which month
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October
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___________________ refers to the effective date on or after which all reportable cases should be registered in a registry database
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Reference date
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A _________________ is a listing of patients seen in a hospital, both inpatient and outpatient with ID-9-CM diagnosis codes
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Disease index
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A case is included on a _______________during the case finding process until the appropriate hospital or physician officially reports the case
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Suspense list
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______________ is a systematic method of identifying all potentially eligible cases that are to be included in the registry database
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Case finding
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_________________is the process of identifying cases quickly for epidemiologic protocols
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Rapid case ascertainment
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Reportable list
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Usually developed by the central registry, is composed of all the reportable case types collected by a cancer registry, and clarifies the types of diagnoses that are not reportable
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Reportable-by-agreement cases
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All kinds of registries are allowed to collect_____________cases. There is not law or regulation that forbids the reporting of those cases to population based registries
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A cancer registry is _______________for an ACoS-approved cancer program
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Mandatory
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Death clearance is performed only by _________________
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Central cancer registries
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______________ are considered the primary casefinding source because 95% of all reportable cases are histologically confirmed.
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Pathology reports
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Disease index
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Is used as a cross-check on the completeness of reporting of pathology cases at hospitals, as well as an effective method to identify clinically diagnosed cases
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A __________ is an example of a codified source document, whereas a __________ is an example of a full-text case finding source document
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Disease index Pathology report
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____________________ are responsible for providing to hospitals a list of the mandatory and optional ICD-9-CM codes that should be included for case finding purposes per the reporting rules of the state or region
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Central registries
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Six common sections of a cancer registry abstract
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Patient identification Cancer identification Stage of disease at diagnosis First course of treatment Outcomes Case administration
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Cancer registry abstract
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Contains all information available related to the diagnosis and treatment of the cancer.
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The cancer data collection manual required to be used by the American college of surgeons commission on cancer is______________
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FORDS
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The goals for abstracting are to have ________, _______, and _________, cancer data
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Timely, accurate, complete
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According to the American college of surgeons commission on cancer program standards, abstracts must be completed within ______months of date of first contact
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6
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Potentially reportable cases that have been identified and are waiting to be abstracted are stored in what is called
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Suspense system
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Completing an abstract as information becomes available is called _____________ abstracting
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Concurrent
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Patient identification
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Accession number Sequence number Social security number Race Date of birth
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Cancer identification
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Laterality Date of initial diagnosis Behavior code Histology Diagnostic confirmation Class of case Primary site Grade/differentiation
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Stage of disease of diagnosis
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Collaborative stage tumor extension Summery stage AJCC TNM Collaborative stage lymph nodes Collaborative stage metastasis at diagnosis
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First course of treatment
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Hormone therapy Radiation therapy Surgical procedure of the primary site Chemotherapy
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Outcomes
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Vital status Date of last contact Cancer status
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When does quality control begin
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At the time of abstracting
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Sequence number takes into consideration
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All reportable primaries over the lifetime of the patient
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Accession number
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Once an _______________is assigned to a a patient, iris never changed or updated even if the patient returns at a later time with a subsequent primary
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Class of case
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Defines the role of the reporting facility in the management of the patient's cancer
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Analytic
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The facility participated in either initially diagnosing and/or delivering all or part of the first course of treatment
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Accession number
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Unique number assigned to a patient that can be used as a numerical control to identify the patient
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Sequence number
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Indicates the number of primaries a patient has had in his or her lifetime
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Date of diagnosis
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The first time a medical practitioner confirms the presence of cancer
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Visual review
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Individual abstracts are reviewed to identify incomplete or inaccurate codes and information
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Edits
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A computer program that compares the coded data with the rules for abstracting
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Text
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Validates the codes assigned in the abstract
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The date of diagnosis is often confirmed ____________________ before a biopsy or surgical resection is performed
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Clinically (such as on physical examination, radiology, laboratory test)
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Two agencies to which facilities accredited by the American college of surgeons commission on cancer will report their data
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NCDB State/territory's central cancer registry
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Three agencies to which state/territory's central cancer registries may report their data
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NAACCR NPCR SEER Canadian Cancer Registry
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Current coding books used in the united states for coding mortality
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ICD-10
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Current coding books used in the United Staes for coding neoplasms for cancer registries
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ICD-O-3
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How many characters does a complete ICD-O code for neoplasms contain?
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10
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What are the principal parts of the ICD-O neoplasm code and what do they represent
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Topography (primary site) 4 characters Morphology (cell type) 4 digits Behavior - 1 digit Grade of differentiation - 1 digit
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What is the most important concern in coding neoplasms
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Accuracy
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Three organizations that have helped to develop the topography and morphology codes used to code neoplasms
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World health organization (WHO) College of American pathologists (CAP) American cancer society (ACS)
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Some events or discoveries that precipitated the development of the MP/H rules
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Increased use of noninvasive imaging techniques Development of advanced laboratory procedures Increased documentation of clinical and pathologic information in the medical record Difficult to train on old rules - too many exceptions Old rules could not be flowcharted for computer applications New codes in ICD-O-3 were not always in hierarchical order
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Why must the multiple primaries rules be applied before the histology coding rules
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Histology rules apply to a single abstract Multiple primaries rules determine how many abstracts to prepare
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If a cancer case does not fit into the site-specific MP/H rules, what happens to it?
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The "Other Sites" rules apply
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What additional modules are included in the hematopoietic and lymphoid neoplasm case reportability and coding rules
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Case reportability Primary site and histology (PH rules) Grade coding (G rules)
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Staging is defined as
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A common language developed to communicate information on the extent of disease
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The purpose of staging is
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To assess the cancer and choose the appropriate treatment To indicate prognosis To estimate survival rate
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Prognostic factors are
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Key pieces of information for patient management
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Why do staging systems change over time
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New information is found and changes occur in the practice of medicine
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Cancer cells metastasize by which method
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Through the bloodstream or lymphatic system, by direct extension to other organs, or by implantation in body cavities
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Cases treated with neoadjuvant therapy must be staged using which prefix in AJCC
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Lower case "y"
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Neoadjuvant therapy is defined as
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Systemic or radiation therapy prior to surgical resection
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Summary stage can be categorized as
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Broad categories with longitudinal stability
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The national program of cancer registries uses which CS-derived stage
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Summary stage
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CS resolved which issue between the other staging systems
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Timing rules
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How many CS data items are there, excluding the site-specific factors
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9
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AJCC staging system can be categorized as
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Forward flexibility and clinical utility
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How did the number of CS site-specific factors expand from CSv1. To CSv2 ?
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From 6 to 25 Conversion of Blancs to 988
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CS best stage is defined as
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A mixture of clinical and pathologic information using the most definitive information available
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In 2011, CS expanded from best stage to include
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Pretreatment and post-treatment
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CS pretreatment stage is defined as
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The information before any treatment
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CS post-treatment stage is defined as
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The information from the surgical resection after neoadjuvant treatment
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AJCC clinical classification is defined as
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Information before initiation of treatment or within 4 months of diagnosis, whichever is shorter
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AJCC pathologic classification is defined as
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Information through completion of definitive surgery or within 4 months of diagnosis, whichever is longer
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CS pretreatment and post-treatment staging is equivalent to which AJCC classifications
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Clinical and y pathologic
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AJCC clinical (c) classification
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At time of diagnosis, before treatment
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AJCC pathologic (p) classification
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After completion of definitive surgery
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AJCC y clinical (yc) classification
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After systemic/radiation therapy of neoadjuvant and before surgery
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AJCC y pathologic (yp) classification
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After neoadjuvant therapy including surgical resection
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AJCC re-treatment (r) classification
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Recurrence after a disease-free interval
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AJCC autopsy (a) classification
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Incidental finding on a postmortem examination
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The goal of cancer treatment is to
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Either completely destroy or control the growth of neoplastic cells without significantly affecting the viability of host cells
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The goal of palliative treatment for cancer patients is to
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Alleviate symptoms to improve the quality of life symptoms
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What are the three main categories of cancer treatment
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Surgery, chemotherapy, radiation therapy
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The acronym NOTES. Stands for
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Natural orifice transluminal endoscopic surgery
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Laser ablation is utilized for what types of malignancy
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Superficial skin cancer Non-small-cell lung cancer Penile cancers
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What type of surgery can be performed remotely
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Robotic
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Radio frequency ablation (RFA) involves the use of
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Heat
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Radio frequency ablation (RFA) is most frequently used for the treatment of
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Liver cancers, both primary and metastatic Lung cancer Brain tumors
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Hormone refractory
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Hormone resistant
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Why use a multi agent chemotherapy
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Each agent acts on the cancer cell in a different phase of its DNA function
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Which cancer vaccine is in most common use
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Gardasil
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What are the two types of monoclonal antibodies
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Rituximab and trastuzumab Heceptin and rituxan
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Monoclonal antibodies work by
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Binding to specific antigens on cancer cells inducing an immunologic response
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Two most common types of antiandrogens used for prostate cancer
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Flutamide and Casodex
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What is the name of the small molecule inhibitors used for gastrointestinal stromatolites tumors and chronic myeloid nous leukemia
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Gleevec
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What are the two most commonly used adrenocorticoids
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Prednisone and decadron
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Three types of bone marrow transplants are
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Autologous, allogeneic, and syngeneic
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Radiation therapy is useful in preventing what type of recurrence
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Local
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The most widely used type of radiation therapy is
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External beam
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IMRT
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Radiation given in beamlets
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IGRT
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Image-guided radiation therapy using images taken each day before treatment
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CyberKnife radiation therapy
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Treatment given using a miniaturized photon linear accelerator Treatment given using cobalt energy
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When is total body irradiation (TBI) used
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Before stem-cell transplant
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Brachytherapy
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Sealed radioactive sources placed in or near tumors
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MammoSite
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Process that has been in use since 2002, to deliver radiation directed to the tumor for breast cancer patients
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What is the most common radioisotope used, and what type of cancer is it used for
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I-131 for thyroid
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The term multimodality refers to
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Combined forms of cancer-directed treatment
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Four types of CAM (complementary and alternative medicine) commonly used by cancer patients are
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Massage therapy, acupuncture, laetrile, and krebiozen Massage therapy, acupuncture, hyperbaric oxygen, chemotherapy with mistletoe extract
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What type of support services is used for some colon cancer patients
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Ostomy support from enterostomal therapist
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Cryosurgery is the use of
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Freezing targeted cancer tissues with the use of argon gas
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What the two types of follow-up
answer
Active and passive
question
What is the primary purpose of performing follow-up
answer
To ensure continued medical surveillance to evaluate success of therapy
question
Which are considered passive follow-up linkage sources
answer
Motor vehicle/driver license files Centers for medicare and medicaid services Stage voter registration files
question
What is the required rate for follow-up in programs approved by the commission on cancer of the American college of surgeons for all eligible analytic patients diagnosed within the last 5 years or from the cancer registry reference date, whichever is shorter
answer
90%
question
What type of follow-up letter is necessary
answer
Physician
question
When a follow-up letter is returned, what date do you use to update your database as the date of last contact
answer
The date patient or representative signed and completed the letter
question
Which are the core data items needed for successful follow-up
answer
Cancer status Date of last contact
question
The follow-up rate is calculated on which groups of patients
answer
Living and dead
question
Why is it necessary to put different verbiage on a patient letter versus a physician letter
answer
To allow letters to nonmedical contacts to be written in a language that is easily understood
question
What are some of the factors that contribute to the costs of performing follow-up
answer
Postage fees Staffing hours
question
Examples of active follow-up
answer
Physician letters Patient letters
question
Some registries perform_______________________ on a routine basis by checking local newspaper obituaries
answer
Passive follow-up
question
The commission on cancer of the American college of surgeons requires accredited cancer programs to meet which standard
answer
Maintain an 80% follow-up rate for for all eligible analytic patients from the cancer registry reference date 90% follow-up rate must be maintained for all eligible analytic patients diagnosed within the last 5 years, or from the cancer registry reference date, whichever is shorter
question
If a patient has multiple primary cancers
answer
All records will be updated with the date of last contact, but the cancer status will need to be entered separately
question
Linking data is the process of
answer
Matching data from different sources based on identical or similar items from each source
question
Two methods of matching
answer
Deterministic Probabilistic
question
Deterministic matching
answer
Requires that records must have an exact match on key fields to be considered the same patient
question
Probabilistic matching algorithm
answer
Creates a match score based on the mathematical likelihood that identical or similar field values indicate a match
question
Which matching method follows this rule "a match cannot be made of one data file is missing a critical data field"
answer
Deterministic
question
The basic premise of the __________________ system is that the higher the score, the closer the match probability
answer
Probabilistic
question
Which matching method is preferred
answer
Probabilistic
question
Four sources of electronic data files
answer
Facility electronic health record Pathology laboratory Physician office/clinic including outpatient oncology Central registry
question
Record consolidation
answer
Process of combining data from two or more records for the same patient and same tumor
question
Benefit to automation of the record consolidation process
answer
Consistency in data collection Saves both money and time
question
Record consolidation rules include
answer
Hierarchy rules Most frequent Known over unknown
question
Determining the number of primary tumors is
answer
Important if registry data are to be comparable
question
Which set of rules do cancer registries in north America use for determining multiple primaries
answer
SEER multiple primary and histology coding rules implemented January 1, 2007
question
When consolidating cases manually,
answer
The results of consolidation can be different based on the reviewers experience, caseload, and knowledge of special ascertainment or coding rules
question
Quality control
answer
Planned set of activities
question
Quality assurance
answer
Monitoring the process and methods used to ensure quality
question
What method of a designed study would be used to monitor data completeness
answer
Reabstracting study
question
What activity measures data consistency
answer
Reliability study
question
Reliability study
answer
Uses a set of standardized medical charts by a sample of data collectors. Reviewing the range of answers and checking on consistency of those answers
question
Reabstracting study
answer
Assesses the quality of the collected data by having a staff member reabstract a sample of abstracts from the medical records. Assessing discrepancies identified by the reabstractor
question
Monitoring activies
answer
Should take place in all aspects of the registry
question
Inter-record checks
answer
Examine data items between related records.
question
Pareto diagram
answer
Helps identify areas that need attention by ranking them
question
Computerized edit checks
answer
Most cost-effective
question
Quality of performance
answer
Degree to which the final product/service will meet the needs of the consumer
question
Death clearance only is an example of
answer
Case incidence completeness
question
Example of acceptance sampling
answer
Computer edit checks
question
Which quality method is most costly
answer
Independent case ascertainment
question
Historical data review involves
answer
Comparison of number of cases expected with those observed
question
Unknown values
answer
Are monitored through process controls Can be legitimately utilized Should have stable rates over time
question
Statistical quality-control principles include
answer
Acceptance sampling Process control Designed studies
question
Three categories of quality
answer
Design Conformance Performance
question
_________________ audit provides verification that coding guidelines and rules are correct as applied by the data collectors
answer
Recoding
question
____________________assesses completeness using estimations from an independent survey of cases
answer
Independent case ascertainment
question
Three industrial quality-control methodologies are
answer
Total quality management Benchmarking Six sigma
question
Example of quality control of data accuracy
answer
Recoding audit
question
Quality control of data consists of
answer
Completeness Timeliness Accuracy
question
Timeliness is critical to a registry quality-control process. The methods for evaluating timeliness are
answer
Lag-time report
question
An abstract has an edit error that states the surgery summary of scope of regional lymph nodes (SurgSumScopeRegLN) field conflicts with the number of lymph nodes examined and number of lymph nodes positive. What kind of edit check is this
answer
Interitem edit
question
A recoding audit will assess
answer
Training needs Inadequate text documentation Application of coding rules
question
SAR
answer
Survey Application Record
question
Which profession is represented on the surveyor team
answer
Surgeons Certified cancer registrars Medical oncologist
question
Two purposes of the survey
answer
Education Evaluation
question
Which is a use for the SAR
answer
Track program activities Customize the survey Report and analyze program activities across the country
question
How can a commission on cancer trained consultant assist a program
answer
By guiding the cancer committee to understand their role
question
The survey focuses on which activities
answer
How clinical care is provided Assurance of the accuracy of data collection How quality of care and patient outcomes are evaluated and improved
question
What is the primary role of the program coordinators
answer
Ensure that the activity for a specified program area fulfills the requirements
question
All of the following are true of the surveyor team
answer
Certified tumor registrars are coc surveyors Physicians from multiple specialties are coc surveyors The surveyor team has more than 40 members
question
Responsibilities of the key contact for survey
answer
Ensures the accuracy of data recorded in the SAR Works with the surveyor and cancer committee to identify the best date for the survey Works with the surveyor to develop the survey agenda
question
What is true about the accredited cancer program performance report
answer
Provides a summary of the program deficiencies Identifies the facility, surveyor, and date of the survey Provides the accreditation award
question
An appeal of an accreditation award is appropriate
answer
When the program had complied with the standard at the time of survey
question
What primary purpose does the cancer registrar database serve
answer
Research Quality management Marketing
question
What prerequisite class focuses on diseases in the human body
answer
Medical terminology
question
What prerequisite class focuses on the definition of common medical terms and their relation to medical diseases and procedures
answer
Medical terminology
question
What course focuses on the definition of cancer, how it develops, and its different types
answer
Cancer disease coding and staging
question
If you wanted to learn about the approved methods in providing comparable data analysis, which core class would you take
answer
Cancer registry operations
question
What methods do the oncology treatment and coding course focus on teaching
answer
How treatment works to eliminate cancer
question
What is a principle of an abstracting methods course
answer
Identification of cases that are eligible for cancer registry database inclusion Methods of documenting clinical information into data fields Independent practice on cancer registry data elements
question
What is necessary for CTRs to maintain their certification
answer
Complete the required CE credits every 2 years Complete 20 hours of CE credits
question
What does not count as an approved activity for continuing education
answer
Formal presentation of non-original work to cancer registry field or audience
question
What is the definition of an asynchronous learning environment
answer
Online learning environment that does not involve a coordinated live interaction
question
What is the program recognition committees role in developing education
answer
Reviews and determines program's criteria for continuing education credits
question
Which committee is represented by the board director of education
answer
Alternative methods committee Continuing education committee Education committee
question
Which committee is not represented by the board director of education
answer
Formal education committee
question
What committee is represented by the professional development board director
answer
Formal education program review committee
question
What is the education committee responsible for
answer
Overseeing the development and delivery of basic and advanced educational opportunities
question
What is the definition of a synchronous learning environment
answer
In-person learning environment that involves "real-time" interaction
question
Prospective cases
answer
Discussed at the time of initial diagnosis with an emphasis on establishing accurate staging, treatment options
question
Retrospective cases
answer
Discussed after the completion of all treatment, primarily for the purpose of education, and are not intended to influence the management of patient care
question
Do only CoC approved facilities hold cancer conferences
answer
No. Consultative meetings similar to cancer conferences occur in facilities not approved by CoC and further support the effectiveness of this type of discussion
question
Who is ultimately responsible for the developing of a cancer conference plan in a CoC approved facility
answer
Cancer Committee.
question
Do all categories of program approval have the same CoC cancer conference requirements
answer
No. The CoC standards for approved programs should be reviewed for category requirements
question
Determining factors for setting the frequency and format of a cancer conference
answer
Program category Number of annual analytic accessions Types of cases seen by the facility Need for consultative services Need for educational activities
question
Name some of the formats used for cancer conferences
answer
Departmental Facility wide Network wide Site focused Academic/teaching Community wide
question
What are some benefits of creating a presenter format for case presentation at a cancer conference
answer
Facilitate the discussions Adhere to the requirements of the CoC Provide useful information for registrar use
question
Name some challenges to physician attendance at cancer conferences
answer
Conflicting schedules for day or time Ease of meeting room access Administrative requirements or restrictions
question
Will commercial support change the format for cancer conferences
answer
No. The format should include the disclosures and transparency documents of CEs are provided
question
Should review of the cases seen within your facility by primary site be completed when selecting cases for presentation of cancer conferences
answer
Yes. If the facility is CoC approved, case presentations are required based on the major sites within the facility
question
Identify some sources for use in selecting cases for presentation at cancer conferences
answer
Physician presenters will personally select the cases for discussion Evaluation of current in-house admissions with a diagnosis of cancer Evaluation of weekly pathology cases with a cancer-related diagnosis Cancer registry involvement through disease index listings or other case find mechanisms
question
Name some services that a cancer conference coordinator provides
answer
Case selection Facilitating cancer conference discussions Reviewing CoC requirements Providing recommendations for improvement of cancer conference
question
Are notes of cancer conference discussion always discoverable during legal proceedings
answer
No It depends on the state's laws
question
Using national treatment guidelines is required by the ____________to a cancer conference in an approved facility
answer
CoC
question
Which step should be taken first in the report-writing tasks
answer
Determine how the recipient will use the report and their level of expertise
question
Which step must be taken to define the data used in a report
answer
Confirm the specific codes used to define variables such as site, morphology, and stage
question
What choices exist if the data requested are not routinely collected by the registry
answer
Restructure the request to use routine data Deny the request if data cannot be obtained for legal or practical reasons Perform a special study to collect the desired information
question
Method of creating complex logic for a report
answer
Start with a simpler version of the request that can be easily verified and add complexity
question
Tables and graphs should be used because
answer
Data are easier to understand when presented in a table or graph
question
What is assistive technology
answer
Computer programs and devices that people with disabilities commonly use to access electronic information
question
When is it appropriate to show data in a table rather than a graph
answer
When comparing exact values among several variables
question
Method for protecting confidential data
answer
Suppression of table cells that have low counts
question
Which is the best method for showing trends in cancer over time
answer
Line graph
question
What is a function of a central registry
answer
To perform as a data repository for a state Monitor cancer incidence trends and mortality Evaluate cancer-control initiatives
question
What type of information that is collected by a central registry is available for public access
answer
Incidence of cancer
question
No facility-specific patient information can be release unless authorized under law
answer
True
question
Casefinding is a system utilized to identify all eligible reporting cases
answer
True
question
Facility sources used to identify cases
answer
Disease indices, pathology and laboratory reports, patient logs
question
Each city has created rules and guidelines for cancer data collection
answer
False
question
Which organizations have established guidelines and standards for cancer reporting
answer
NCI, SEER, NPCR, NAACCR, ACoS
question
NAACCR standard metafiles are crucial to central registry reporting
answer
True
question
Assessing edits on a regular basis increases the time to review cases before submission
answer
False
question
NCDB
answer
Nationwide, facility-based oncology data set
question
Which CoC Standard is defined as complete data for all analytic cases submitted to the NCDB in accordance with the annual call for data
answer
3.6
question
Submission of class of case 6 is required
answer
False
question
What is the backbone of the NCDB metafile
answer
NAACCR standard edits
question
In addition to running the NCDB metafile, what other practice is beneficial to perform before NCDB file submission
answer
GenEdits Plus
question
Which types of cancer are evaluated by the clinical checks
answer
Breast and colorectal
question
Logistic regression
answer
mathematical model used in statistics to estimate (guess) the probability of an event occurring having been given some previous data
question
small p-value (typically ≤ 0.05)
answer
indicates strong evidence against the null hypothesis, so you reject the null hypothesis.
question
large p-value (> 0.05)
answer
indicates weak evidence against the null hypothesis, so you fail to reject the null hypothesis.
question
Survival measures are often expressed as the _____________of patients alive at some point subsequent to the diagnosis of their cancer, or represented as the ___________of a group of patients serving a specified amount of time
answer
Proportion Probability
question
Survival can be measured in various ways. The choice of measurement depends on the research question or ____________
answer
Event of interest
question
Event of interest
answer
Outcome being measured
question
What may lead to censored (incomplete) event
answer
When a patient is no longer followed, that is, los to follow-up When a patient dies of a cause that is not the event of interest When a patient dies from a car accident
question
There are two standard measures of survival
answer
Observed survival Net survival
question
Observed survival
answer
Estimate of the probability of surviving all causes of death
question
Hypothetical probability of survival of cancer in the absence of other causes of death
answer
Relative survival Cause specific survival
question
Two approaches for net survival can be estimated by
answer
Relative survival Cause specific survival
question
Clinical practice guidelines
answer
Nationally standardized recommendations for health care developed by a. Formal process Effective in translating research into clinical practice
question
Clinical treatment protocols
answer
document with the aim of guiding decisions and criteria regarding diagnosis, management, and treatment in specific areas of healthcare.
question
ASCO (american society of clinical oncology) are focused on
answer
A single question of group of question around an important topic in specific areas of cancer
question
The most comprehensive, most frequently updated and used guidelines available in any area of medicine are
answer
NCCN guidelines
question
A performance measure
answer
Is a set of technical specifics that define how to calculate a rate for a specific indicator of quality Uses the measures to determine whatever rate it is and how it compares
question
Cancer registries can provide measurement data to assess how CPGs are being followed or to monitor other aspects of care by
answer
Real-time reporting
question
Performance measurement data for comparison with other accredited commission on cancer facilities is provided by
answer
National cancer data base (NCDB)
question
How is central cancer registry data different from hospital cancer registry data
answer
Central cancer registry data can be used to accurately determine site-specific cancer incidence rates in the population
question
Why has interest in using central cancer registry data for research increased in recent years
answer
Data from the central cancer registry provide a framework for answering questions of external validity
question
Population-based cancer control research
answer
The conduct of basic and applied research in the behavioral, social, and population sciences to create or enhance interventions that, independently or in combination with bio-medical approaches, reduce cancer risk, incidence, morbidity and mortality
question
Four categories of cancer control research that use central cancer registry data
answer
Primary prevention and chemoprevention research Biomarkers, screening and early detection studies Patterns of care research Survivorship research
question
How can central cancer registry data be used for policy research
answer
Central cancer registry data provide a way to identify geographic areas that might benefit from policy initiatives Central cancer registry data provide a way to measure the impact of policy changes
question
Cancer control
answer
Use of evidence-based prevention, early detection, diagnosis, treatment, and continuing care intervention strategies to reduce cancer incidence, morbidity, and mortality in defined populations
question
Secondary prevention
answer
Slowing disease progression preventing complications, and limiting disability
question
Why is central cancer registry data so important to cancer control
answer
Without the type of information contained in most central cancer registries, we could not focus our limited cancer control resources on the areas with the greatest need, and we could not evaluate the effectiveness of our cancer control interventions
question
Screening effect
answer
The fact that when you screen for disease you find new previously unidentified cases of cancer causing the incidence rate to increase
question
Four data sources that are generally available in each US state and can be used for defining the burden of cancer
answer
US Census data Behavioral risk factor surveillance system data Central cancer registry data Vital records mortality data
question
Three major types of cancer for which evidence based cancer control intervention strategies are currently available
answer
Lung cancer Colorectal cancer Breast cancer
question
central cancer registries are _______________based
answer
population
question
central cancer registries try to collect information on all newly diagnosed cancer cases in a geographic are to ____
answer
describe the cancer burden
question
which state was the first to start collecting cancer incidence data
answer
Connecticut
question
as states formed their own cancer registries in the 1970s and 1980s, they used
answer
SEER rules hospital rules their own rules
question
which groups originally got together to form the American Association of Central Cancer Registries
answer
National Cancer Institute, American College of Surgeons, American Association of Cancer Institutes, and the American Cancer Society
question
Who is a founding and Sponsoring member of NAACCR
answer
NCRA
question
the American Association of Central Cancer Registries became the North American Association of Central Cancer Registries when
answer
several Canadian provinces sought membership and expressed interest in adopting the same standards
question
NAACCR is governed by
answer
a board of directors
question
employees of central cancer registries in North America are considered ______________members
answer
NAACCR
question
the mission of NAACCR is to
answer
promote uniform data standards, provide education and training, aggregate and publish data , certify registries, and promote data use
question
NAACCR work is done primarily by
answer
various committees, work groups, task forces, and ad hoc groups composed of volunteers
question
the NAACCR committee that evaluates new data items and codes is
answer
Uniform Data Standards Committee
question
NAACCR's first standards volume published in 1994 represented the status of agreed-on data items and codes. The groups agreeing to these standards were
answer
NAACCR, American College of Surgeons, National Cancer Institute, Center for Disease Control and Prevention, National Cancer Registrars Association
question
NAACCR certification criteria are based on measures to assess
answer
timeliness of data accuracy of data completeness of data
question
To aggregate cancer data over different jurisdictions, data must be
answer
collected using the same rules and definitions cover the same time period be of the same quality
question
the NAACCR committee structure provides an opportunity
answer
to have a national forum to discuss issues and develop a consensus
question
Cancer in North American (CINA) includes data on more than __ million cancer cases
answer
6
question
Data research products produced by NAACCR include
answer
CINA CINA +Online CINA Delux
question
Population-based cancer registration started at the provincial/territorial level in Canada in what year
answer
1932
question
Canada has _____ independent provincial/territorial registries that report to its national registry system
answer
13
question
How many provincial/territorial cancer registries cover less than a 1 million population
answer
8
question
Canada's provinces and territories administer publically funded health insurance programs by assigning a unique, lifetime identifier referred to as the
answer
Health Card Number or HCN
question
In Canadian Province the following is true
answer
cancer is not a reportable disease (by law) they do not offer a certification program for cancer registrars Ethnicity data are not a standard data element in the Canadian cancer registry
question
what is the goal of the Commision on Cancer
answer
to improve survival and quality of life for cancer patients through standard setting, prevention, research, education, and the monitoring of comprehensive quality care
question
how many member organizations are involved with the Commission on Cancer
answer
48
question
what the four cornerstones of cancer program accreditation
answer
cancer committee cancer conferences cancer registry quality improvement program
question
benefits of cancer program accreditation
answer
provides a framework for cancer program structure and process includes access to cancer program and data standards provides for external and internal assessments of the quality of care being provided to cancer patients allows access to the national cancer data base to assess and improve care provides educational tools, resources, and best practices to enhance cancer program performance results in promotion and recognition by the public, payers, and government agencies
question
what is the primary purpose of the Outstanding Achievement Award
answer
to recognize cancer programs that strive for excellence in providing quality care to the cancer patient
question
what are the three eligibility requirements that must be met before a cancer program can be considered for survey
answer
demonstrate 1 year of compliance with the standards have accrued 2 years of data with 1 year of successful follow-up have met the requirements for consideration for accreditation as outlined in the Cancer Program Standards manual
question
how many Commission on Cancer accredited cancer programs are there in United States and Puerto Rico
answer
more then 1450
question
What percentage of newly diagnosed cancer patients are accessioned annually into the National Cancer Data Base
answer
70%
question
How is the National Cancer Data Base data used
answer
measure treatment patterns and outcomes evaluate hospital provider performance conduct research and develop focused studies to meet the demand for an ongoing assessment of the quality of cancer care assess and validate nationally accepted quality measure for cancer care develop effective resources and tools to improve outcomes at the national, regional, and local levels
question
National Cancer Data Base Web-based tool
answer
benchmark hospital comparison reports NCDB Survival Reports Cancer Program Practice Profile Reports Rapid Quality Reporting System NCDB Public Benchmark Reports
question
What is the name of the Commission on Cancer's data standards manual
answer
FORDS (facility oncology registry data standards)
question
Primary role of the Cancer Liaison Physician
answer
interpret and monitor their facility's national Cancer Data Base data and the facility's plan to use the information to evaluate and improve quality of care. report NCDB data to the cancer committee on a quarterly basis (at least 4 time a year) report on CoC activities to the cancer committee, and serve as liaison for their cancer program with the American Cancer Society and facilitate development of a collaboration plan
question
What is a objective of the American Cancer Society/Commission on Cancer partnership
answer
expanding cancer awareness/information availability, as well as American Cancer Society services delivery at the community level. increasing utilization of ACS services and programs at Commission on Cancer accredited cancer programs. engaging the Cancer Liaison Physicians in the CoC accredited cancer programs to support implementation of local prevention and early detection programs and state cancer plans, promoting CoC accredited cancer programs and the quality of care provided at these facilities
question
In what year was the firs edition of Cancer Staging Manual published
answer
1977
question
The organizations that started the AJCC are known as
answer
Founding Members
question
Before being known as the AJCC, what was the group called
answer
American Joint Committee for Cancer Staging and End Results Reporting
question
Which organization is the administrative sponsor of the AJCC
answer
American College of Surgeons (ACoS)
question
What is the revision cycle for the AJCC Cancer Staging Manual
answer
6-8 years
question
In what year was version 1 of the Collaborative Staging System released
answer
2004
question
Which organization is the administrative sponsor for the Collaborative Stage Data Collection System
answer
AJCC
question
What does TNM staging system describe
answer
anatomic extent of cancer at the time of the initial diagnosis and before the application of definitive treatment
question
AJCC was founded by __________
answer
by American College of Surgeons in 1959
question
Nonanatomic factors were first added to the classifications that modified stage groups beginning with the _________________
answer
sixth edition of the AJCC Cancer Staging Manual
question
Collaborative Staging was originally developed to________
answer
provide a translation between the TNM staging system of the AJCC and the SEER Summary Staging System
question
Quality Assurance Programs transformed into _____________
answer
Performance Improvement Programs
question
A common performance improvement model used in many hospitals is the ______________ model
answer
plan, do, check, act
question
_________________are descriptions of key elements in the process of care that should be accomplished to achieve maximum quality and maximum cost
answer
Critical pathways
question
____________ was the name of TJC's (the joint commission) initiative to intergrade performance processes into the accreditation process
answer
ORYX
question
TJC (the joint commission) defines a core measure set as a ________________________carefully selected to provide, when viewed together, a robust picture of the care provided in a given area
answer
unique grouping of performance measures
question
The conception of TJC (the joint commission) began with
answer
Dr. Ernest Codman
question
Hospital standardization was one of the first activities of the newly formed_______________
answer
ACoS (American college of surgeons)
question
How many standards were there in the minimum standards
answer
5
question
The American College of Surgeons (ACoS) was founded by __________with other physicians in 1910
answer
Dr. Martin and Dr. Codman
question
What are the four underlying concepts for the Agenda for Change
answer
patient outcomes are influenced by all of the activities of a healthcare organization continuous improvement in the quality of care should be a priority of healthcare organizations TJC should focus on these activities of healthcare organizations that are most important to the quality of care traditional assessments of compliance with standards should be complemented by the accredited organizations collection, analysis, and feedback of data that reflect their actual performance I n undertaking key activities
question
Three major initiatives for the Agenda for Change include
answer
redesign of TJCs Standards to stress the entire organization's effectiveness in patient services redesign of the survey process to provide more interactive consultative services development of a national performance measurement system, commonly known as the indicator measurement system
question
Agenda for Change (AfC)
answer
a new movement in the 1980 that was a response to the dramatic increase in healthcare costs
question
Performance measurement system
answer
an inter-related set of outcome and/or processes that support internal comparisons or organizations performance over time and external comparison of performance among organizations at comparable times
question
Audit
answer
a retrospective tool to assess quality of care
question
Clinical practice guidelines
answer
outlines of strategies for patient management that describes a range of acceptable ways to diagnose, manage, or prevent specific diseases and conditions
question
Quality Assurance
answer
a formal approach to one of the original TJCs minimum standards
question
What law led to the establishment of the SEER program
answer
the National Cancer Act of 1971
question
SEER registries routinely collect data on what types of information on the patients and their cancers
answer
patient demographics primary tumor site tumor morphology and stage at diagnosis initial course of cancer treatment follow-up for vital status
question
Name local sources of initial case finding
answer
hospital registries pathology laboratories electronic pathology reports physicians offices and clinics
question
name sources of follow-up information
answer
social security administration state vital records department national death index motor vehicle registration
question
How recent is the complete data set submitted by the SEER registries in November of each year
answer
data submitted in November is complete to January 1 of the preceding year
question
What analytic software program is used to test trends in cancer statistics for statistical significance
answer
Joinpoint (http://srab.cancer.gov/joinpoint/) and Average Annual Percent Change
question
Three annual statistical reports where SEER data are combined with data from other national surveillance partner
answer
annual report to the nation on the status of cancer cancer in north America u.s. cancer statistics
question
Beyond the data/software package SEER*Stat, what is available on the web site for statistical inquiries
answer
fast*stats statistical fact sheets cancer query system (CANQUES)
question
Beginning in 2003, NCI funded SEER registries to link their data to what database, aimed at addressing racial misclassification in the cancer registries, and although not perfect, it is a logical step in the process of identifying addition cancer cases among American Indian and Alaska Native populations
answer
Indian Health Service (IHS)
question
Investigators have examined the use of cancer tests and procedures and the costs of cancer treatment through a collaborative effort inking SEER data to what other database
answer
Medicare claims data
question
SEER is being linked to the national Longitudinal Mortality Study to add socioeconomic data at the individual level that cannot be obtained from the SEER database itself. What data elements are available in the NLMS
answer
Self-reported race/ethnicity, marital status, education, income, occupation and industry, residence, nativity/immigrant status, smoking status, health status, and availability of health insurance
question
For more than two decades, NCI has utilized this flexible mechanism of Rapid Response Surveillance Studies to conduct studies by individual and collaborative groups of SEER investigators. What are the six categories of studies
answer
1. evaluating methodologic issues 2. evaluating cancer treatment and outcomes 3. monitoring screening practices 4. monitoring health behaviors and risk factors 5. linking databases 6. improving technical aspects of registry operations
question
What coding system formed the basis for the Collaborative Staging System implanted in 2004 as part of the effort to simplify and standardize the rules and guidelines for collecting cancer data in the United States
answer
SEER Extent of Disease coding system
question
What are the data quality goals for the Data Quality Profile (DQP) for death certificate only cases, completeness and follow-up
answer
less than 105% death certificate only cases greater than 98% estimated completeness more than 90% follow-up of patients (95% for those 65 years old or older)
question
The National Program of cancer Registries objectives are outlined in
answer
Cancer Registries Amendment Act
question
Evaluation activities conducted by the National Program of Cancer Registries
answer
NPCR-CSS Data Evaluation Reports NPCR Program Evaluation Instrument NPCR Data Completeness and Quality Audits
question
A National Program of Cancer Registries goal is to provide data to _____________so that the __________ can be monitored and that ________can be planned
answer
public health planners burden of disease cancer prevention and control programs
question
NCDB Reporting Tools available through the CoC Datalinks Portal include
answer
NCDB Hospital Comparison Benchmark Reports, NCDB Survival Reports, Cancer Program Practice Profile Reports (CP3R) Rapid Quality Reporting System (RQRS)
question
_________________cases are included in the National Program of Cancer Registries Cancer Surveillance System analytic file
answer
In situ bladder
question
What is the title of the publication of official annual federal cancer statistics
answer
United States Cancer Statistics
question
Content for educational programs is identified through
answer
quality assurance activities
question
The ___________________ provides new cancer registrars an opportunity to gain hands-on practice in cancer registry operation
answer
Cyber Cancer Registry
question
In what publication would you find an abstract/article about developing a trauma registry
answer
Journal of Registry Management (JRM)
question
What are the goals and objectives for education and professional development in NCRA
answer
provide comprehensive educational opportunities that are accessible, cost appropriate and forward thinking develop a comprehensive education plan to meet the changing demands of the profession and the CTR credentialed individual deliver basic and advanced (post-CTR) education opportunities expand and enhance formal education opportunities monitor and encourage informatics role in cancer registry profession
question
how long is the term of office for someone who is voted in as President-Elect/Secretary of the NCRA
answer
3 years
question
What committee determines the process and development of the Distinguished Member Award
answer
The Award Committee
question
What meets the eligibility requirements for the Council on Certification
answer
Has been a CTR for 5 years
question
Why was the education foundation formed
answer
The Foundation allows NCRA to receive and expend funds for educational development and products to benefit NCRA members at lower prices (tax exempt)
question
You work in a hospital. Your colleague, a CTR, has just been fired. You see her destroying registry records. What NCRA committee would you notify
answer
Ethics Committee
question
How long is the term of office for someone elected to the position of Treasurer Junior
answer
2 years
question
What year was the Education Foundation granted its 501C3 tax status
answer
2004
question
How many hours of practicum experience are required under Route A before taking the CTR examination
answer
160 hours
question
The goals and objectives and characteristics of Central registries and hospital registries are so similar, they may be considered identical
answer
False
question
Population-based central registries provide for calculation of incidence rates
answer
True
question
Some central registries like the National Cancer Data Base (NCDB) are not population based
answer
True
question
Specify two substantial funding sources/organizations for population-based central registries
answer
NCI/SEER CDC/NPCR
question
An Advisory Committee to a central registry can provide outreach to the local community and state, and provide helpful support when needed
answer
True
question
All central registries have similar staffs, despite their objectives, caseload, and catchment area
answer
False
question
Personnel, or staff, found in a central registry
answer
Medical or Scientific Director/Epidemiologist Registry/Project Manager Office/Accounts Manager Abstractors (CTR skill staff) Quality control/Management Data processing (IT personnel) Statistician Coding/processing Research analyst Data entry Secretarial/clerical
question
All National Program of Cancer Registries training materials are available with an annual subscription
answer
False
question
Recent events, including computerization, are lessening the need for security and confidentiality of central registry data
answer
False
question
IRB
answer
Institutional Review Board
question
It is better for each central registry to used its own coding systems to enhance security and confidentiality
answer
False
question
Five standard setters for central cancer registries
answer
ACoS/CoC AJCC SEER NPCR NCRA NAACCR WHO
question
Which is not a basic Data item for central registries
answer
Optimum patient vitamin doses
question
For case finding purposes, the Reportable List refers to allowable drug compounds that are approved for treatment
answer
False
question
All cancer patients are seen in hospitals. Nonhospital sources of patients are unlikely
answer
False
question
E-path reporting (electronic pathology reporting)
answer
to enhance the completeness, timeliness, consistency, and efficiency with which cancer data are transmitted by pathology laboratories, and then received and processed by central cancer registries.
question
Death Clearance ensures that
answer
all persons with cancer on their death certificate are correctly ascertained by the central registry
question
If an abstract is prepared by a hospital-based CTR, no quality control is necessary by the central registry
answer
False
question
The Central Registry need no be concerned with patients who live within their catchment area but are diagnosed or treated outside their catchment area
answer
False
question
Computers have become an important part of many processes within the central registry
answer
True
question
Name purposes for central registries to perform record linkages
answer
casefinding duplicate detection passive follow-up linking patients with other cohorts or risk exposure records
question
There are two types of record linkage
answer
deterministic probabilistic
question
The primary quality-control concerns of central registries involve which two straightforward questions
answer
How complete is case ascertainment How complete and accurate are the data that are collected
question
Using the data can provide important quality feedback
answer
True
question
Active follow-up
answer
refers to someone initiating direct contact with patients. From a central registry perspective, it may also include contacts made by hospital registrars with physician's offices
question
Passive follow-up
answer
Refers to methods that do not require registry contact with hospitals, physicians, or individual cancer patients. These methods usually involve computerized searches of existing non-registry files that may contain the cancer patient's name
question
Passive follow-up methods are preferred, but they are more expensive
answer
False
question
In comparing incidence rates between groups, use of age-specific incidence rates controls for difference in the age composition of the groups
answer
True
question
Relative survival rate
answer
ratio of the observed survival rate in the study population to the expected survival rate in the subset of the general population with the same characteristics as the study population. it is the observed survival rate, adjusted because some of the subjects can be expected to die of causes of death other than that under study
question
The Central registry is not obligated to use their data in any way
answer
False
question
Well-documented cancer clusters, or hot spots, have been identified in more than 40 states
answer
False (13 states)
question
Many different types of scientific studies can be performed on the population-based data of central registries
answer
True
question
Scientific studies that can be based on central registry data
answer
cancer mapping GIS (geographical information system) ecologic or correlation case-control cohort genetic patterns of care survival surveillance cancer control
question
The history of U.S. cancer registration began in
answer
1920s
question
The SEER Program of the NCI was started in
answer
1973
question
Legislation enabling the NPCR was passed in
answer
1992
question
Cancer is a reportable disease, under state law, in how many states
answer
50 (all states)
question
GIS (geographical information system) use in central cancer registries has been on the _____ in recent years
answer
increase
question
What is the open source language for managing and displaying geographic data on the internet
answer
KML
question
The process of assigning geographic information to a cancer patient record based on the place of usual residence is known as
answer
geocoding
question
Which tends to have better geocoding quality, urban or rural
answer
urban
question
a form of data analysis that incorporates information about the geographic location events is known as
answer
spatial analysis
question
A geographic area of unusually high or low occurrences of cancer is known as a
answer
cluster
question
Flexible aggregation refers to the ability to
answer
combine cases into any geographic unit for analysis
question
The National Cancer Data Base (NCDB) provides the means for all of the following
answer
comparative analysis to examine patterns of care active monitoring of cancer care in the United States Important information to those interested in the care of cancer patients
question
The activities of the NCDB are funded by
answer
ACS and ACoS
question
The NCDB was established in
answer
1989
question
The NCDB captures what percentage of all newly diagnosed malignant cancer cases in the United Staes annually
answer
70%
question
The NCDB contains information on almost _____million cases of reported cancer diagnoses for the period 1985 through 2007
answer
25
question
Categories of information that the collected data in the NCDB include
answer
Patient characteristics Tumor staging Histology characteristics Type of first course treatment administered Disease recurrence Survival information
question
The NCDB contains data submitted by
answer
Cancer programs accredited by the CoC
question
Data submission to the NCDB is a requirement specified in which standard of the CoCs Cancer Programs Standards
answer
3.6
question
Parts of the NCDB data cycle
answer
Annual call for data Data processing that includes edit checks and writing case records to the CoCs data warehouse Data analysis and evaluation
question
The NCDB requires that as many as 5 specified years of data be submitted during the annual call for data to facilitate obtaining the most recent data available, as well as ____________ and _____________ data for previously reported patients
answer
Follow-up recurrence Survival
question
The primary method of evaluating the quality of data during submission to the NCDB is the use of
answer
Edits
question
Which types of cases that failed an edit would not be written to the NCDB data warehouse
answer
Cases that accumulate a data quality score of 200 or greater Cases that received rejection edits
question
CoC accredited cancer programs are required to resolve which of the following types of cases that failed an edit
answer
Cases that accumulate a data quality score between 1 and 199 Cases that accumulate a data quality score of 200 or greater Cases that received rejection edits
question
The NCDB uses ______________________to identify duplicate casea
answer
A contextual code based on specific data item code values from the record
question
The NCDB does not contain information that can be sued to identify
answer
Patients name
question
For reporting and analysis of data, the NCDB organizes much of its data by
answer
Disease site
question
Name reports and publications based on NCDB data
answer
Public benchmark reports Hospital comparison benchmark reports NCDB Survival Reports Cancer Program Practice Profile Reports (CP3R)
question
The application that allows the public and hospitals to design customized reports based on selected data items is called
answer
Benchmark reports
question
The application that allows CoC accredited cancer programs to compare patterns of care and assess their own trends of care for breast and colorectal cancers is called
answer
CP3R (cancer program practice profile reports)
question
The acronym ACTUR stands for
answer
automated central tumors registry
question
What is the median age of the veteran population
answer
61 for men and 47 for women
question
Only active duty military patients are accessioned into the ACTUR database
answer
False
question
The department of Defense (DoD) includes information on patients' participation in military campaigns and exposure to toxic agents for ___________ and _________ purposes
answer
historical epidemiologic
question
ACTUR differs from its civilian counterparts in the type of data that is required to be collected. name some different data items
answer
the DoD requires that ACTUR data sets are military specific, and include documentation of the sponsor's (military participant) 1. social security number 2. branch of service 3. active duty status 4. participation in military campaigns, 5. exposure to toxic agents
question
Approximately what percentage of U.S. population is eligible for benefits from the VA
answer
24%
question
Only veterans eligible for benefits from the VA
answer
False
question
What is the current mission of the VAACCR
answer
collect data from all VA medical centers diagnosing and/or treating veterans with cancer, aggregate the data, and make it available for a variety of uses
question
Unlike the civilian sector________________is/are the first source of contact for follow-up information
answer
the patient
question
The DoD beneficiary pool age 65 and older is expected to _______ in future years
answer
increase
question
Which is not a use of the data collected by the VA
answer
transfer to the Department of Defense
question
Which describes an accurate depiction of the difference between DoD cancer registries and the civilian sector
answer
DoD registries maintain a patient convenience file: civilian registries, for the most part, do not
question
Which is not an example of Cooperative Oncology Group
answer
Cancer Therapy Evaluation Program (CTEP)
question
Which is an example of Cooperative Oncology Group
answer
Southwest Oncology Group Cancer and Leukemia Group B National Surgical Adjuvant Breast and Bowel Project
question
Through what decision was the National Cancer Institute (NCI) charged with the responsibility of conducting basic scientific research in oncology and applying the results to clinical practice
answer
National Cancer Act of 1937
question
Who is eligible to participate in Phase I clinical trails
answer
people with cancer who have no known effective treatment options or they have already tried other treatment options
question
What phase of clinical trials focuses on learning how a new treatment compares with standard, or the most widely accepted, treatment
answer
Phase III
question
In what phase of the clinical trial is the safety of a new agent tested against a specific type of caner using the dosage determined in the Phase I clinical trial
answer
Phase II
question
What is the main function of an institutional review board (IRB)
answer
To protect the rights of human subjects participating in research
question
Who is responsible to the clinical trials group for conducting research
answer
the principal investigator (PI)
question
What is true about informed consent documents
answer
it contains specific, required information about the clinical trial and is a legal document it is a patient's authorization to participate in a clinical trial it must be reviewed and approved by each centers' institutional review board (IRB)
question
The National Cancer Act of 1971 promoted the development of oncology training programs, facilities, and public education services
answer
True
question
clinical trials are the first step in the research process of moving scientific research from the laboratory to treatments for people
answer
False
question
The Belmont Report, published in 1978, mandated the establishment of institutional review board (IRB), outlined protocol design criteria, and required that written informed consent be provided to all research subject
answer
True
question
In Phase III trials, the dose is usually increased group by group to find the highest dose that does not cause unacceptable harmful side effect, called toxicity
answer
False
question
Phase I of clinical trial
answer
15-30 people to find a safe dosage to decide how the agent should be given to observe how the agent affects the human body
question
Phase II of clinical trial
answer
Less then 100 people to determine whether the agent of intervention has an effect on a particular cancer to see how the agent or intervention affects the human body
question
Phase III of clinical trial
answer
Generally, from 100 to thousands of people To compare the new agent of intervention (or new use of treatment) with the current standard
question
Phase IV of clinical trial
answer
Several hundred to several thousand people to further evaluate the long-term safety and effectiveness of a new treatment
question
Randomization is a method used to prevent bias in research
answer
True
question
Many community hospitals across the country participate in clinical trials as part of which NCI Program
answer
community clinical oncology program (CCOP)
question
What was the first organization to produce Cancer Incidence in Five Continents (CI5)
answer
UICC
question
IACR
answer
International Association of Cancer Registries, which is an association of cancer registries from around the world
question
IARC
answer
International Agency for Research on Cancer, which is a WHO agency whose mission is cancer research for cancer prevention
question
What two organizations took over production of CI5 with the third volume
answer
IARC (international association of cancer registries) IACR (international agency for research on Cancer)
question
Some advantages to research in comparing cancer rates across countries
answer
understanding cancer causes dissemination of cancer control and treatment comparison of risk factors
question
Where was the first cancer registry in the U.S.
answer
Connecticut
question
When and where was the meeting that jump-started the expansion of international data collection on cancer rates
answer
1946 in Copenhagen
question
What organization compiles the National Cancer Data Base and heads the Approvals Program for hospitals in the United States
answer
Commission on Cancer of the American College of surgeons
question
What countries currently belong to the MECC
answer
Israel Egypt Turkey Cyprus Jordan Palestinian Authority
question
The European Network of Cancer Registries (ENCR) was established in 1989 to improve the quality, comparability, and availability of cancer incidence data, and develop a basis for monitoring cancer rates in the
answer
European Union
question
Two large international studies focused on cancer survival are
answer
EUROCARE CONCORD
question
_____________ presents incidence, prevalence, and mortality estimates from 27 cancers for all countries in the world
answer
GLOBOCAN
question
Federal Government (main supporting agency of)
answer
National Exposure Registry Lupus Registry
question
State Government (main supporting agency of)
answer
Alzheimer's Disease Registry Special Needs Emergency Registry
question
Academic Center (main supporting agency of)
answer
early rheumatoid arthritis treatment evaluation registry environmental polymorphism registry temporomandibular joint replacement registry
question
Non-for-Profit organization
answer
United States Eye Injury Registry Cystic Fibrosis Registry
question
Commercial Enterprise
answer
Lamotrigine Pregnancy Registry
question
What is not a current trend in registry software development
answer
writing programs that open registry databases to general public inquiries
question
AFIP DNA registry
answer
identifying combat casualties
question
Nun Study
answer
tracking course of Alzheimers disease
question
national marrow donor program
answer
finding transplant matches
question
trauma registry
answer
preventing accidents
question
advance directive registry
answer
making giving wills accessible
question
case definition includes
answer
identification of population covered
question
Quality control encompasses
answer
data definitions personnel training data edits data submission tracking
question
Organizations contribute to registry infrastructure by
answer
supporting and funding registries, defining and monitoring data standards, collecting, reporting, and transmitting data
question
Individual contribute registry infrastructure by
answer
gathering and entering data into registry databases
question
software companies contribute to registry infrastructure by
answer
designing and providing electronic programs t brought which registry data are collected and transmitted
question
An allogeneic bone marrow transplant
answer
involves an infusion of bone marrow or stem cells from a donor that are given to the patient after they have received high-dose chemotherapy.
question
autologous bone marrow transplant
answer
a patient's own bone marrow or stem cells are given to them after they have received high-dose chemotherapy.
question
autologous stem cell transplantation,
answer
blood-forming stem cells are removed, stored, and later given back to the same person.
question
Syntactic interoperability
answer
If tower more systems are capable of communicating and exchanging data.
question
Semantic interoperability
answer
Ability to automatically interpret the information exchanged meaningfully and accurately in order to produce useful results as defined by the end users of both systems